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Home Events Workshop on Person-Centred Care Systems: From Theory to Practice

Workshop on Person-Centred Care Systems: From Theory to Practice

World Patients Alliance (WPA) & International Society for Quality in Health Care (ISQua) jointly hosted a workshop based on the recently published white paper – 'Person-Centred Care Systems: From Theory to Practice'. In order to make Person-Centred Care (PCC) an expected standard of care, we need to systematically redesign legislation, organisation, funding, information systems, education, and research. This ambitious White Paper aimed to answer the most difficult question: how do we embed PCC into our systems, and how do we make it the expected norm?

The workshop started with welcome addresses by Andrew Spiegel, Chair WPA and Dr Carsten Engel, CEO ISQua. Anna Edwards, Chair, Person and Family Centred Advisory Council, ISQua was the moderator of the event and introduced the Workshop. The first speaker of the workshop was Dr. Gro Rosvold Berntsen, Norwegian Center for E-Health Research, Norway and lead author of the Whitepaper. Dr  Berntsen highlighted that both patients and health professionals have repeatedly voiced a vital concern that  health care is currently not paying sufficient respect to the individuality and human dignity of persons who seek help from care systems. In order to make person-centred care the norm, there is a need to systematically redesign legislation, organization, funding, information systems, education, and research. The aim is to design person-centred care into the system so that person-centred care is the logical choice and is expected and rewarded.  Dr Anuradha Pichumani, Executive Director, Sree Ranga Hospital, Chengalpattu, India presented on how PCC is successfully integrated in her hospital in Chengalpattu, India. She briefed about the steps taken in this regard, which included listening to patients voice, using patient journey to support the system, collaboration with the community, patient engagement in the patient safety, using digital tools for PCC, patient and family advisory council and measurement & evaluation of PCC.

The presentations were followed by a panel discussion in which both the speakers were joined by two leading patient advocates Penney Cowan, American Chronic Pain Association and Regina Kamoga, Community Health and information Network Uganda.  Penney Cowan said that healthcare providers must respect patients as persons and it is very important to understand what our goals are not only as patients but also as persons. Patients have certain rights and needs to be treated with respect. It must be made sure that our voice is heard and that we are atthe center of care. Not a bystander, but we have to be in the center of the team. Regina Kamoga said that for me, the recognition that I'm just not a body, a passive receiver of care, but one with a mind who can make contribution to their treatment processes. To be part of the decisions. I think for me, that alone makes the whole difference. The health care providers must make us feel better as patients don’t only have physical needs, but also emotional needs.

Hussain Jafri, Executive Director, WPA gave the closing remarks at the end of the workshop.

Please click here for presentations of the Workshop.

Workshop Programme

1

Welcome

          Andrew Spiegel, Chair WPA

          Dr Carsten Engel, CEO ISQua

 

 

2

Introduction to Workshop

          Anna Edwards, Chair, Person and Family Centred Advisory Council, ISQua

 

3

Person-Centred Care Systems: From Theory to Practice – ISQua Whitepaper

          Gro Rosvold Berntsen, Norwegian Center for E-Health Research, Norway; and lead author of the Whitepaper

 

4

Implementation of PCC

          Anuradha Pichumani, Executive Director, Sree Ranga Hospital, Chengalpattu, India

 

5

Panel Discussion

          Penney Cowan, American Chronic Pain Association

          Regina Kamoga, Community Health and information Network Uganda

          Gro Rosvold Berntsen, Norwegian Center for E-Health Research

          Anuradha Pichumani, Sree Ranga Hospital, Chengalpattu, India

          Moderated by Anna Edwards, Person and Family Centred Advisory Council, ISQua

 

6

Closing Remarks

          Dr Hussain Jafri, Executive Director WPA

          Dr Carsten Engel, ISQua

 

Speakers Biographies

Dr Anuradha Pichumani
Dr Anuradha Pichumani is an OBGYN, Laparoscopic Surgeon and Infertility specialist. She is the Executive Director of Shri Rengal Hospital, Chengalpattu, and Director of Narbhavi Multispeciality Hospitals Pvt Ltd, Kancheepuram, TN India. Anuradha is also an Executive Board Member of ASQua, and a member of ISQua's PFCAC and Educational Advisory Committees. Dr Anuradha Pichumani was recently honoured with the CAHO Quality Champion Award at CAHOCON 2023. This award is conferred to recognize outstanding individuals who have demonstrated a significant contribution to the field of healthcare quality.
Dr Gro Rosvold Berntsen
Dr Gro Rosvold Berntsen is a Professor at the Norwegian Centre for E-health Research. She has worked in the field of e-health since 2009. Gro researches technology-assisted quality assurance, patient pathways across care boundaries, integrated care and person-centred care for patients with complex and long-term needs. She has a PhD in osteoporosis epidemiology (2000) and was licensed as a medical doctor in 1994. Gro is the lead author of ISQua's 2022 Whitepaper - Person-Centred Care Systems: From Theory to Practice
Penney Cowan
In 1980 Penney Cowan founded and is CEO of the American Chronic Pain Association (ACPA). Ms. Cowan is a recognized speaker advocating a multi-disciplinary approach to pain management. She has been an outspoken advocate and consumer representative for pain issues, contributed to numerous books, videos and Websites, consulted on the development of several pain management programs, issues and received numerous awards from organizations, such as the Institute for Public Service, American Pain Society, and American Academy of Pain Medicine. She served as Consumer Representative for the FDA/CDER Anesthetic and Analgesic Drug Products Advisory Committee (AADPAC); Interagency Pain Research Coordinating Committee (IPRCC) of the National Institute of Health; and Co-chair of the National Pain Strategies Public Education and Communication Working Group, part of the IPRCC. Ms. Cowan is the author of Patient or Person, Living with Chronic Pain. She has also written all manuals and materials used by the American Chronic Pain Association. She successfully established September as Pain Awareness Month in 2001. Ms. Cowan is also the founding Director and Secretary of WPA.
Regina Mariam Namata Kamoga
Regina Mariam Namata Kamoga is an Executive Director, for Community Health and Information Network (CHAIN) for Uganda, an organization that promotes the empowerment of people living with, and affected by, HIV and AIDS and non-communicable diseases. Ms. Kamoga has served on numerous health advisory committees and boards at the national and international level. Ms. Kamoga works on patients rights, particularly the rights of persons with HIV/AIDS,TB, malaria and non-communicable diseases, and capacity building for NGOs and community based organizations on governance and policy issues, health literacy and access. Ms. Kamoga’s work involves building and strengthening networks in collaboration with other organizations at the international, national and community level to address issues of patient safety and patient-centered healthcare. Ms. Kamoga is also the founding Director WPA.

Date

Apr 20 2023
Expired!

Time

1:30 pm - 2:40 pm
Category