Members WPA - World Patients Alliance

Membership Type: Full
Disease Area: Support for families and carers; skills development for carers; networking with other organisations to share best practice in care of frail older persons
Cape Town, South Africa

Dopeca

Membership Type: Full
Disease Area: Congenial anomalies especially related with brain and spine
Lahore, Pakistan

Dreamsickle Kids Foundation

Membership Type: Full
Disease Area: Sickle Cell Disease
Las Vegas, USA

Društvo atopijski dermatitis (Atopic dermatitis association)

Membership Type: Full
Disease Area: Atopic dermatitis
Medvode,Slovenia

ecancer

Membership Type: Associate
Disease Area: Cancer
Bristol, United Kingdom

Egyptian Alzheimer Society

Membership Type: Full
Disease Area: Dementia especially Alzheimer Disease
Cairo, Egypt

Ensemble contre le Lymphome ECL

Membership Type: Full
Disease Area: Lymphoma
Marrakesh, Morocco

ESPERANTRA

Membership Type: Full
Disease Area: Cross Disease
Lima. Peru

Europa Uomo Switzerland

Membership Type: Full
Disease Area: Cross Disease
Ehrendingen, Switzerland

European Federation of Homeopathic Patients’ Associations

Membership Type: Full
Disease Area: Cross Disease
London, United Kingdom

European Thrombosis and Haemostasis Alliance (ETHA)

Membership Type: Associate
Disease Area: Thrombosis and hemostasis
Brussels, Belgium

Fabry International Network

Membership Type: Full
Disease Area: Farby Disease
Melsele,Belgium

Fadia Survive & Thrive Cancer Association

Membership Type: Full
Disease Area: Metastatic, Breast Cancer Prmary and metastatic, and other types of cancers and prevention to the public besides quality of life issues.
Salmiya, Kuwait

FAIM – Association For Autoimmune Diseases

Membership Type: Full
Disease Area: Autoimmune Diseases
Farsø, Denmark

Faraja Cancer Support Trust

Membership Type: Full
Disease Area: Oncology
Kenya

FEDERACIÓN ESPAÑOLA DE CÁNCER DE MAMA – FECMA

Membership Type: Full
Disease Area: Breast Cancer
Santander, Spain

FindMeCure Foundation

Membership Type: Associate
Disease Area: Cross Disease
Hertfordshire, United Kingdom

FNETH

Membership Type: Full
Disease Area: Liver Diseases
Madrid, Spain

Fondation A.R.CA.D, Aide et Recherche en CAncérologie Digestive

Membership Type: Full
Disease Area: Digestive Cancers
Paris, France

Fondazione Soleterre Onlus

Membership Type: Full
Disease Area: pediatric oncology
Milan, Italy

Footprints Foundation For Children in Zambia

Membership Type: Full
Disease Area: First aid, HIV Counselling and Care giver’s education
Lusaka, Zambia

For Grace: Women In Pain

Membership Type: Full
Disease Area: Women with chronic pain & people with cancer
California, USA

Foundation – Integration JP II

Membership Type: Full
Disease Area: Disabled people
Lodz, Poland

Fundación Aladina

Membership Type: Full
Disease Area: childhood cancer and blood diseases
Madrid, Spain

Fundación centro Colombiano de Eilepsia y Enfermedades Neurológicas

Membership Type: Full
Disease Area: Epilepsy
Cartagena, Colombia

Fundación de Alba

Membership Type: Associate
Disease Area: Cross Disease
Toluca, Mexico

Fundación de Apoyo a Enfermos con Trastornos Hipofisiarios (FAETH)

Membership Type: Full
Disease Area: Trastornos Hipofisirios
Cdla martha de Roldos, Ecuador

Fundacion Donde Quiero Estar

Membership Type: Full
Disease Area: Cancer
Buenos Aires, Argentina

Fundación Edificando Vidas, El Salvador

Membership Type: Full
Disease Area: Cancer
San Salvador, El Salvador

Fundacion Esclerosis Multiple Amor (FEMA)

Membership Type: Full
Disease Area: Enfermedades: Esclerosis Multiple (EM), Esclerosis Lateral Amiotrofica (ELA), Neuromielitis Óptica (NMO)
Cortés, Honduras

Fundación Movicancer

Membership Type: Full
Disease Area: Cancer
Casa, Nicaragua

Fundacion Pacientes de Cancer de Pulmon

Membership Type: Full
Disease Area: LUNG CANCER
Buenos Aires, Argentina

Fundacion Retorno Vital

Membership Type: Full
Disease Area: Cross Disease
Bogotá, Colombia

Fundacja Urszuli Jaworskiej

Membership Type: Full
Disease Area: multiple sclerosis, hepatitis C, leukemia
Warszawa, Poland

Fundapso

Membership Type: Full
Disease Area: Psoriasis, Psoriasis Arthritis and other skin diseases.
Cali -Valle, Colombia

FUVIDA

Membership Type: Full
Disease Area: Diabetes
Guayaquil,

Gastrointestinal Society

Membership Type: Full
Disease Area: Gastrointestinal and liver
Vancouver, Canada

Genetic Alliance Australia

Membership Type: Full
Disease Area: Lymphoma
Sydney, Australia

Ghana Relief Organization

Membership Type: Full
Disease Area: Child Health & Nutrition
Maryland, USA

GIPSO (Groupe d’aide à la recherche et à l’information sur le psoriasis)

Membership Type: Full
Disease Area: Psoriasis and psoriatic arthritis
Charleroi, Belgium

Global Allergy & Airways Patient Platform

Membership Type: Full
Disease Area: Allergy, asthma, eczema, COPD
Washington, USA

Global Chinese Breast Cancer Organizations Alliance

Membership Type: Full
Disease Area: Breast cancer
Kowloon, Hong Kong

Global Colon Cancer Association

Membership Type: Full
Disease Area: Colorectal Cancer
Philadelphia, USA

Global Heart Hub

Membership Type: Full
Disease Area: Cardiovascular Disease
Galway, Ireland

Global Liver Institute

Membership Type: Full
Disease Area: Liver diseases (in particoular: NASH, Liver Cancers, Paediatric and Rare Liver Diseases and Transplants
Washington DC, USA

Global Marwari Charitable Foundation.(GMCF-INDIA)INDIA

Membership Type: Full
Disease Area: Cancer,Diabitis
Maharashtra, India

Goodness and Mercy Missions

Membership Type: Full
Disease Area: Women & Child Empowerment
Boyo, Cameroon

Grupo Español de Pacientes con Cáncer

Membership Type: Full
Disease Area: Cancer
Madrid, Spain

GUYANA DIABETIC ASSOCIATION

Membership Type: Full
Disease Area: Diabetes
Georgetown

HAEMOPHILIA FOUNDATION OF NIGERIA

Membership Type: Full
Disease Area: BLEEDING DISORDERS (HAMEOPHILIA)
Kaduna-kaduna,Nigeria

Hands of Hope Community

Membership Type: Associate
Disease Area: Providing the Inclusive Education to children with autism and intellectual disabilities
Phnom Penh

Healing Venezuela

Membership Type: Associate
Disease Area: Cross Disease
Birmingham, United Kingdom

Health Care Consumers’ Association ACT

Membership Type: Full
Disease Area: Cross Disease
Canberra, Australia

Health Consumers Council (WA) Inc

Membership Type: Full
Disease Area: Cross Disease
Perth, Australia

Healthier & Happier Life Organization (HHLF)

Membership Type: Full
Disease Area: Cross Disease
Accra, Ghana

healthywomen

Membership Type: Full
Disease Area: Cross Disease
New York, USA

HELLENIC LEAGUE AGAINST RHEUMATISM

Membership Type: Full
Disease Area: Rheumatic and musculoskeletal diseases
Athens, Greece

HEMA-Association for support of patients and caregivers of Hematology

diseases

Membership Type: Full
Disease Area: Hematological diseses
Skopje, North Macedonia

HEPATITIS COALITION OF GHANA

Membership Type: Full
Disease Area: Viral Hepatitis
Accra, Ghana

HEPATITIS FOUNDATION OF GHANA

Membership Type: Full
Disease Area: Hepatitis
Accra, Ghana

House086

Membership Type: Full
Disease Area: Lymphoma
Beijing, China

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL)

Membership Type: Full
Disease Area: Hematooncological diseases
Zagreb, Croatia

Human Care Trust

Membership Type: Full
Disease Area:Human care
London, United Kingdom

Hyper-Cent Care Africa

Membership Type: Full
Disease Area:Patient support & Pallitive care
Patient support & Pallitive care

ICAN, International Cancer Advocacy Network

Membership Type: Full
Disease Area:Cancer
Tucson, USA

INDIAN PATIENTS SOCIETY FOR PRIMARY IMMUNODEFICIENCY-IPSPI

Membership Type: Full
Disease Area:Primary Immunodeficiency Diseases/Disorders
Odisha, India

Indira Cancer Trust

Membership Type: Full
Disease Area: Cancer
Colombo, Sri Lanka

Innovating Health International

Membership Type: Full
Disease Area: Cancer care, women’s health
Port au Prince, Haiti

Institute Atopika

Membership Type: Full
Disease Area: Atopic dermatitis (and comorbidities), allergy, asthma
Maribor, Slovenia

INSTITUTE FOR HARM REDUCTION ON HEALTH & ENVIRONMENT

Membership Type: Full
Disease Area: Drug use disorder, smoking
Male, Maldives

Inter-regional public organization for patients with hematological diseases «Most Miloserdiya» («Mercy Bridge»)

Membership Type: Full
Disease Area: Help for patients with hematological diseases
Moscow, Russia

Intergrated Community Approach to Development

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

International Alliance of Dermatology Patient Organizations (also known as GlobalSkin)

Membership Type: Full
Disease Area: Skin Diseases
Ontario, Canada

International Cancer Institute

Membership Type: Full
Disease Area: Cancer, Sickle Cell, Diabetes and Hypertension
Eldoret, Kenya

International Children’s Palliative Care Network (ICPCN)

Membership Type: Associate
Disease Area: Palliative Care
Bristol, United Kingdom

International Foundation for AiArthritis

Membership Type: Full
Disease Area: Autoimmune diseases and autoinflammatory diseases with arthritis as a major clinical component
St. Louis, USA

International Pain Foundation

Membership Type: Full
Disease Area: Cross Disease
Arizona, USA

International Painful Bladder Foundation

Membership Type: Full
Disease Area: Interstitial Cystitis, Bladder Pain Syndrome, Hunner Lesion, Hypersensitive Bladder
Naarden, Netherlands

International Pemphigus and Pemphigoid Foundation

Membership Type: Full
Disease Area: Pemphigus and Pemphigoid
Sacramento, USA

International Society for Quality in Health Care (ISQua)

Membership Type: Associate
Disease Area: Cross Disease
Dublin, Ireland

International Society on Thrombosis and Haemostasis (ISTH)

Membership Type: Associate
Disease Area: Thrombosis and hemostasis
North Carolina, USA

International Topical Steroid Awareness Network (ITSAN)

Membership Type: Full
Disease Area: Topical Steroid Withdrawal Syndrome
Georgia, USA

Irish Haemochromatosis Association

Membership Type: Full
Disease Area: Haemochromatosis or ‘iron overload’
Dublin, Ireland

Israel Cancer Association

Membership Type: Full
Disease Area: Cancer
Giv’atayim, Israel

KASH WELFARE TRUST

Membership Type: Full
Disease Area: Breast Cancer
Karachi, Pakistan

KENYA HOSPICES AND PALLIATIVE CARE ASSOCIATION

Membership Type: Associate
Disease Area: Hospices & Palliative Care
Nairobi, Kenya

Kenyan Network of CAncer Organizations

Membership Type: Full
Disease Area: Cancer
Nairobi, Kenya

kohgiluyeh and boyer ahmad Thalassemia Society, Iran

Membership Type: Full
Disease Area: Thalassemia and Sickle cell
Yasooj, Iran

Krabbe UK

Membership Type: Full
Disease Area: Krabbe Disease
Manchester, United Kingdom

Latin Health Leaders

Membership Type: Associate
Disease Area: Cross Diseasee
Florida, USA

Let’s Health Win Foundation

Membership Type: Full
Disease Area: Cross Disease
Warsaw, Poland

Lhak-Sam (BNP+)

Membership Type: Full
Disease Area: HIV, and other STIs, reproductive health and the mental health of the Key Affected Population
Thimphu, Bhutan

Life Empowerment Support Organisation

Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

Lifesaving Society Korea

Membership Type: Associate
Disease Area: Cross Disease
Seoul, South Korea

LiveWell Initiative LWI

Membership Type: Full
Disease Area: Cross Disease
Victoria Island, Lagos.

Looms for Lupus

Membership Type: Full
Disease Area: Autoimmune & Inflammatory & Musculoskeletal
Los Angeles, USA

Lupus and Allied Diseases Association, Inc.

Membership Type: Full
Disease Area: Lupus and allied diseases, related autoimmune conditions and co-morbidities
New York, USA

Lutheran World Federation ?Augusta Victoria Hospital

Membership Type: Associate
Disease Area: advanced oncology services and nephrology
Jerusalem, Israel

LYLE patient organization for Lymphoma, Leukemia and MDS

Membership Type: Full
Disease Area: Lymphoma, leukemia and MDS
Naestved, Demark

Lymfklierkanker Vereniging Vlaanderen vzw

Membership Type: Full
Disease Area: Lymphoma
Brussels, Belgium

Lymphoma Action

Membership Type: Full
Disease Area: Lymphoma
Aylesbury, United Kingdom

Lymphoma Patient Association LYPA

Membership Type: Full
Disease Area: Lymphomas and CLL
Nis, Serbia

Malian observatory for quality and safety of care (OMAQUASS)

Membership Type: Associate
Disease Area: Cross Disease
Bamako, Mali

Malta Health Network

Membership Type: Full
Disease Area: Cross Disease
Qormi, Malta

Manage Health Foundation

Membership Type: Full
Disease Area: Oncology, Haematology, Diabetology and Nephrology
Ahmedabad, India

Manica Youth Assembly (MAYA)

Membership Type: Associate
Disease Area: Environment Protection
Mutare, Zimbabwe

Mauritius Council of Social Service (MACOSS)

Membership Type: Associate
Disease Area: Cross Disease
Port Louis, Mauritius

Mental Health Society of Ghana (MEHSOG)

Membership Type: Full
Disease Area: Mental health and epilepsy
Accra, Ghana

Mentally Aware Nigeria Initiative

Membership Type: Full
Disease Area: Mental Health
Lagos, Nigeria

Mexican Association Against Psoriasis

Membership Type: Full
Disease Area: Psoriasis and other skin diseases
Mexico City, Mexico

Michael and Francisca Foundation

Membership Type: Full
Disease Area: Stroke and NCDs
Lagos, Nigeria

Mothers Against Medical Error

Membership Type: Full
Disease Area: Medical Errors
Georgia,USA

Naijaid

Membership Type: Full
Disease Area: Cross Disease
London, United Kingdom

NASPEC- Nucleo Assistêncial para pessoas com câncer

Membership Type: Associate
Disease Area: palliative care of all cancro and Advocacy
Salvador, Brazil

National AssNational Association for help and Support of Persons with Multiple Sclerosis, NATIONAL ASSOCIATION FOR MS

Membership Type: Full
Disease Area: Multipe sclerosis
Skopje, North Macedonia

National Cancer Control Foundation

Membership Type: Full
Disease Area: Cancer
Sana’a, Yemen

National Community of women, girls and men living with HIV in Ugada (NACWOLA)

Membership Type: Associate
Disease Area: HIV/AIDS
Kampala, Uganda

National Diabetes Organization – DiaLeb

Membership Type: Full
Disease Area: Diabetes
Beirut, Lebnon

National organization Allergy and me

Membership Type: Full
Disease Area: Allergy, asthma, atopic eczema
Novo Beograd,Serbia

National Rheumatoid Arthritis Society

Membership Type: Full
Disease Area: Rheumatoid Arthritis and Juvenile Idiopathic Arthritis
London, United Kingdom

National Thalassemia Welfare Society

Membership Type: Full
Disease Area: Thalassemia and Sickle Cell disease
New Delhi, India

NGO Futura

Membership Type: Associate
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Podgorica Montenegro

Northern Healthy Connections Society

Membership Type: Full
Disease Area: The organization works specifically with persons who use drugs and are at risk of transmission of Sexually Transmitted and Blood Bourne Infections (STBBIs)
Nova Scotia, Canada

NVO RAM- Association for helping people with rheumatic diseases

Membership Type: Full
Disease Area: Rheumatic diseases
Budva, Montenegro

Osteoprosis Australia

Membership Type: Associate
Disease Area: Osteoporosis & bone health
Canberra, Australia

Painaustralia

Membership Type: Full
Disease Area: Chronic pain
Canberra, Australia

Palestinian Osteoporosis Prevention Society/POPS

Membership Type: Full
Disease Area: Osteoporosis
Beit Jala, Palestine

Pan African Positive Women’s Coalition-Zimbabwe

Membership Type: Full
Disease Area: HIV and AIDS, COVID-19 and SRHR
Kadoma, Zimbabwe

Pancreatic Cancer Canada

Membership Type: Full
Disease Area: Pancreatic cancer
Toronto, Canada

Papua New Guinea National Cancer Centre

Membership Type: Associate
Disease Area: Cancer
Finschhafen, Papua New Guinea

Patient Safety Movement Foundation

Membership Type: Full
Disease Area:Cross Disease
Los Angeles, USA

Patients Safety Foundation

Membership Type: Full
Disease Area: Cross Disease
Lodz, Poland

Penang of Multiple Sclerosis Support Group Association

Membership Type: Full
Disease Area: Multipe sclerosis
Penang Island,Malaysia

Peoples Development Community(PDC)

Membership Type: Associate
Disease Area: Cross Disease
Dhaka, Bangladesh

pharmacists nineveh medical organization

Membership Type: Associate
Disease Area: Cross Disease
Mosul, Iraq

PinkDrive NPC

Membership Type: Full
Disease Area: Cancer, HIV, TB, Diabetes
Johannesburg, South Africa

Polish Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Warsaw, Poland

Polskie Towarzystwo Chorób Atopowych

Membership Type: Full
Disease Area: Atopic diseases (atopic eczema, asthma, hives, allergic rhinitis, allergic conjunctivitis) and allergies
Warsaw, Poland

Positive Health Media Initiative

Membership Type: Full
Disease Area: Cross Disease
Benue State, Nigeria

Positive Men’s Union (POMU)

Membership Type: Full
Disease Area: HIV/AIDS and Tuberclosis
Kampala, Uganda

Preventive Cardiovascular Nurses Association (PCNA)

Membership Type: Associate
Disease Area: Cardiovascular Disease and its comorbidities
Wisconsin, USA

Professional Relief Organisation

Membership Type: Associate
Disease Area: Cross Disease
Essex, United Kingdom

Psoriasis Asia Pacific

Membership Type: Full
Disease Area: NCDs
Mandaluyong City, Philippines

Psoriasis awareness club Bangladesh

Membership Type: Full
Disease Area: Psoriasis and psoriatic arthritis
Dhaka, Bangladesh

Psoriasis Philippines

Membership Type: Full
Disease Area: Psoriasis and Psoriatic Arthritis
Makati City, Philippines

Psoriatic Patient Support Association “KALYPSO"

Membership Type: Full
Disease Area: Psoriasis and Psoriatic Arthritis
Athens, Greece

Public Foundation “Ergene"

Membership Type: Full
Disease Area: breast cancer and cervical cancer
Bishkek, Kyrgyzstan

Pulmonary Hypetension Latin Society / Sociedad Latina de Hipertension Pulmonar

Membership Type: Full
Disease Area: Pulmonary Hypertension
Miami, USA

Rare Disease Foundation

Membership Type: Full
Disease Area: Rare Disease
Vancouver, Canada

Rare Disease Ghana Initiative

Membership Type: Full
Disease Area: Undiagnosed, Genetic and Rare Diseases
Accra, Ghana

Rare Diseases Foundation of Iran(RADOIR)

Membership Type: Full
Disease Area: Rare Diseases, Rare Genetic Disorders and Undiagnosed Diseases (UDN)
Tehran, Iran

Rare Disorders Kenya

Membership Type: Associate
Disease Area: Cross Disease,
Nairobi, Kenya

Rare Disorders NZ

Membership Type: Full
Disease Area: All Rare Disorders
Wellington, Newzealand

Reach to Recovery International, Inc.

Membership Type: Full
Disease Area: Breast Cancer
Baltimore, USA

RED NOSES Clowndoctors International

Membership Type: Associate
Disease Area: We are a healthcare clowning organisation, anything related to mental health & psychosocial support, as well as humour and culture, would be of interest.
Vienna, AUSTRIA

Red Ribbon Istanbul

Membership Type: Full
Disease Area: HIV/AIDS
Istanbul, Turkey

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Membership Type: Full
Disease Area: Complex Regional Pain Syndrome (CRPS)
Milford, USA

RheumaCura

Membership Type: Full
Disease Area: Specific Disease Area, rheumatic and musculoskeletal disorders and disease
Bern, Switzerland

Royal Health Awareness Society

Membership Type: Associate
Disease Area: Cross Disease
Amman, Jordan

Rwanda NCD Alliance

Membership Type: Full
Disease Area: NCD
Kigali – Kinamba, KN8 Av27

Save Foundation

Membership Type: Full
Disease Area: Mother & child health care
Lahore, Pakistan

SENOSALUD

Membership Type: Full
Disease Area: Cancer de Mama
Caracas, Venezuela

SHWE YAUNG HNIN SI CANCER FOUNDATION MYANMAR

Membership Type: Full
Disease Area: Cancer
Yangon, Myanmar

Situka Alliance Initiative, Uganda – SAI

Membership Type: Full
Disease Area: We engage men to build resilient and healthy communities for themselves, spouses and children including the rights to seek medical services.
Kampala, Uganda

Skin and allergic desisases

Membership Type: Full
Disease Area: Skin and allergic
Moscow, Russia

Skin-Hub – Koalicja na rzecz dermatoz i alergii

Membership Type: Full
Disease Area: All dermatoses and allergies
Warsaw, Poland

Slovenian Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Ljubljana, Slovenia

Sociedade Portuguesa de Esclerose Multipla (SPEM)

Membership Type: Full
Disease Area: Multiple Sclerosis
Lisboa, Portugal

South African Depression and Anxiety Group. (SADAG)

Membership Type: Full
Disease Area: mental health
South Africa

Stroke Association Supportnetwork-Ghana (SASNET-GHANA)

Membership Type: Full
Disease Area: NCDs and Pademics
Accra,Ghana

STROKE CARE INTERNATIONAL

Membership Type: Full
Disease Area: STROKE
Lagos, Nigeria

Stroke Support India ( an effor of Nav Anubhuti Welfare Society)

Membership Type: Full
Disease Area: STROKE
Greater Noida, India

Stupid Cancer, Inc.

Membership Type: Full
Disease Area: cancer (specifically adolescent and young adult cancer)
New York, USA

Syria algad relief foundation

Membership Type: Full
Disease Area: Cross Disease
Giza, Egypt

Tanzania Breast Cancer Foundation

Membership Type: Full
Disease Area: Breast Cancer
Dar es Salaam, Tanzania

Thalassaemia and Sickle Cell Australia

Membership Type: Full
Disease Area: Haemoglobin Disorders
Victoria, Australia

THALASSAEMIA FEDERATION OF PAKISTAN

Membership Type:
Disease Area: Beta Thalassaemia
LAHORE, PAKISTAN

Thalassaemia Society of Pakistan

Membership Type: Full
Disease Area: Thalassaemia
LAHORE, PAKISTAN

The Albino Trust of Zimbabwe

Membership Type: Full
Disease Area: Albinism and other forms of disabilities
Harare, Zimbabwe

The Asthma Society of Ireland

Membership Type: Full
Disease Area: Asthma
Dublin, Ireland

The Bricon Foundation

Membership Type: Full
Disease Area: Cancer
Lagos, Nigeria

The BVI Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Tortola, British Virgin Islands

The Cholangiocarcinoma Foundation

Membership Type: Full
Disease Area: Cholangiocarcinoma
Kabuga, Rwanda

The Dominica Cancer Society Inc

Membership Type: Full
Disease Area: Cancer
Roseau, Commonwealth of Dominica

The Dorcas Cancer Foundation

Membership Type: Full
Disease Area: Childhood Cancer
Lagos, Nigeria

The Ehlers-Danlos Society

Membership Type: Full
Disease Area: Ehlers-Danlos syndrome
New York, USA

The Estonian Inflammatory Bowel Disease Association

Membership Type: Full
Disease Area: IBD
Tallinn, Estonia

The Mended Hearts, Inc.

Membership Type: Full
Disease Area: Cardiovascular Disease
Georgia, USA

The National Back Pain Association

Membership Type: Full
Disease Area: Back pain
London, United Kingdom

The National Organisation for People Living with Hepatitis B

Membership Type: Full
Disease Area: Viral Hepatitis
Kampala, Uganda

The Patient Benevolent Society

Membership Type: Full
Disease Area: Cross Disease
Lahore, Pakistan

The Swallows Head & Neck Cancer Support Charity

Membership Type: Full
Disease Area: Head & Neck Cancer
Manchester, United Kingdom

Together against cancer Fund

Membership Type: Associate
Disease Area: oncology
Moscow, Russia

Tulasi Maya Memorial Cancer Relief Foundation

Membership Type: Full
Disease Area: Cervical Cancer, Breast Cancer, Cancer Advocacy and Tobacco control
Kathmandu, Nepal

Tunisian Association of Multiple Sclerosis Patients

Membership Type: Associate
Disease Area: multiple sclerosis
Tunis, Tunisia

Uganda Allinace of Patients" Organisations

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Uganda Women’s Cancer Support Organisation

Membership Type: Full
Disease Area: cancer
Bukoto, Kampala

UKRAINIAN DIABETIC FEDERATION

Membership Type: Full
Disease Area: DIABETES
Kyiv, Ukrain

Unidos Contra el Cáncer (Tour Rosa Assication)

Membership Type: Full
Disease Area: Cancer
San José, Costa Rica

United Kingdom Thalassaemia Society

Membership Type: Full
Disease Area: Thalassaemia
London, United Kingdom

Uzbekistan CML patients league

Membership Type: Full
Disease Area: Chronic Myeloid Leukemia, Acutel Lymphoid Leukemia, GIST
Tashkent, Uzbekistan

Venezuelan Breast Cancer Research and Education Foundation

Membership Type: Full
Disease Area: Breast Cancer
Caracas, Venezuela

Vlaams Hepatitis Contactpunt

Membership Type: Full
Disease Area: liver diseases (hepatitis and NASH)
Brussels, Belgium

Welfare Hand Organisation

Membership Type: Full
Disease Area:Cross Disease
Peshawar, Pakistan

Wiskott-Aldrich Foundation

Membership Type: Full
Disease Area: Wiskott-Aldrich Syndrome
Atlanta, USA

Women and Child Support Organization (WOCSO)

Membership Type: Full
Disease Area: Cross Disease
Mogadishu, Somalia

Women for Cancer, Early Detection and Treatment

Membership Type: Full
Disease Area: Cervical Cancer
Eldoret, Kenya

WOMEN IN COMMUNITES ZIMBABWE

Membership Type: Full
Disease Area: HIV, TB and Malaria and Cervical cancer
Gweru, Zimbabwe

Women in Hepatitis Africa WIHA

Membership Type: Full
Disease Area: Hepatitis
Lagos, Nigeria

Women’s Coalition Against Cancer – WOCACA

Membership Type: Full
Disease Area: Reproductive Cancers and other Non-Communicable Diseases
Lilongwe, Malawi

World Alliance of Pituitary Organizations ( ‘WAPO’)

Membership Type: Full
Disease Area: All related diseases (Thyroid, Obesity, Diabetes 2, Vision problems, etc) and side-effects which are often involved in a pituitary disorder.
Uden, Netherlands

YASKA Brunei

Membership Type: Full
Disease Area: Chilhood Cancer
PulauBerambang, Brunei

Yayasan Peduli Psoriasis Indonesia (psorIndo)

Membership Type: Full
Disease Area: All diseases insider of the body
Jakarta, Indonesia

Ye Ethiopia cancer association

Membership Type: Full
Disease Area: Cancer
Addis Ababa, Ethiopia

Zambian Cancer Society

Membership Type: Full
Disease Area: Cancer
Lusaka, Zambia

Zimbabwe People Living with HIV Coordinating Board

Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

National Alliance for Rare Diseases Support – Malta

Membership Type: Full
Disease Area: Cross Disease
Valletta, Malta

Lake Health and Wellbeing

Membership Type: Full
Disease Area: Cross Disease
Bird Rock, Saint Kitts and Nevis

Russian Association on Osteoporosis

Membership Type: Associate
Disease Area: Osteoporosis
Moscow, Russia

Charter of “Fighting Leukemia" Public Union

Membership Type: Full
Disease Area: Leukemia
Baku, Azerbaijan

SANO

Membership Type: Full
Disease Area: Malignant diseases in children
Skopje, North Macedonia

Mathiwos Wondu-YeEthiopia Cancer Society

Membership Type: Full
Disease Area: NCD & Cancer
Addis Ababa, Ethiopia

ASHIC, Foundation for Childhood Cancer

Membership Type: Full
Disease Area: Childhood Cancer
Dhaka, Bangladesh

Fertility Europe

Membership Type: Full
Disease Area: Infertility
Brussels, Belgium

FINCOPP-FEDERAZIONE ITALIANA INCONTINENTI E DISFINZIONI PAVIMENTO PELVICO

Membership Type: Associate
Disease Area: Cross Disease
Bari, Italy

ASSOCIAZIONE ITALIANA STOMIZZATI A.I.STOM. O.D.V.

Membership Type: Associate
Disease Area: STOMIA
Bari, Italy

Campaigning for Cancer

Membership Type: Full
Disease Area: Cancer
Johannesburg, South Africa

Breast Care International (BCI)

Membership Type: Full
Disease Area: Breast Cancer
Kumasi, Ghana

SEN Slovensko/Cesko

Membership Type: Associate
Disease Area: Religious and Spiritual Problem as defined in the psychiatric manual DSM V
Bánovce nad Bebravou, Slovakia

Pain Support Organisation

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Trinity Healthcare Foundation

Membership Type: Full
Disease Area: Cross Disease
Lagos, Nigeria

Dup15q Alliance

Membership Type: Full
Disease Area: Dup15q syndrome
North Carolina, USA

Cancer Association of Namibia (WO30)

Membership Type: Full
Disease Area: Cancer
Windhoek, Namibia

Crohn en colitis ulcerosa vereniging vzw

Membership Type: Full
Disease Area: IBD
Brussels, Belgium

Pun Yaung Hnin Si (Pink Rose) Breast Cancer Patients Support Group

Membership Type: Full
Disease Area: Breast Cancer
Yangon, Myanmar

ABRALE – Brazilian Lymphoma and Leukemia Association

Membership Type: Full
Disease Area: Oncology
São Paulo, Brazil

Oncoguia

Membership Type: Full
Disease Area: Cancer
São Paulo, Brazil

SAID NGO

Membership Type: Full
Disease Area: Colon Cancer Awareness
Beirut, Lebanon

Lugei Foundation Uganda

Membership Type: Full
Disease Area: Cross Disease
kampala Uganda

PT.AVC – União de Sobreviventes, Familiares e Amigos

Membership Type: Full
Disease Area: Stroke
Viseu, Portugal

Australia Alopecia Areata Foundation Inc

Membership Type: Associate
Disease Area: Alopecia Areata – All forms
Melbourne, Australia

Por Una Vida Libre de ACV

Membership Type: Full
Disease Area: Cross Disease
Argentina

MULTIPLE SCLEROSIS ASSOCIATION OF LANKA

Membership Type: Full
Disease Area: Multiple Sclerosis
Colombo, Sri Lanka

Psoriatic and Atopic Eczema Association Czech Rep.

Membership Type: Full
Disease Area: Cross Disease
Prague, Czech Republic

Eczema Outreach Support

Membership Type: Full
Disease Area: Atopic Eczema
Edinburgh, United Kingdom

Alliance Algérienne contre les Maladies rares

Membership Type: Full
Disease Area: Rare Disease
Baraki, Algeria

World Federation of Public Health Associations

Membership Type: Associate
Disease Area: Cross Disease
Geneva, Switzerland

Associação Portuguesa de Doentes da Próstata

Membership Type: Associate
Disease Area: Prostata cancer
Olivais, Portugal

Asociación Tejido Azul

Membership Type: Full
Disease Area: Pulmonary Hypertension
Meta, Colombia

Federación Colombiana de Enfermedades Raras (FECOER)

Membership Type: Full
Disease Area: Rare Diseases
Provincia De Castilla, Colombia

United Mission to Rural Area(UNMIRA) Nepal

Membership Type: Full
Disease Area: Cross Diseases
Tokha Municipality, Nepal

Asociación Guatemalteca Héroes de Esperanza

Membership Type: Full
Disease Area: Hemato-Oncology Diagnoses and Hemophilia
Guatemala City, Guatemala

ANAQ Foundation for Sickle Cell & Nutrition

Membership Type: Full
Disease Area: Sickle Cell Disease
Kumasi, Ghana

Ukrainian Hemophilia Association

Membership Type: Full
Disease Area: Cross Disease
Kyiv, Ukraine

Women’s Hope Foundation (WHF)

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Pacienti IBD

Membership Type: Full
Disease Area: IBD
Polská, Czech Republic

DEBRA South Africa

Membership Type: Full
Disease Area: Specific Disease Area, Epidermolysis Bullosa
Cape Town, South Africa

Niger League Figth againt Cancer

Membership Type: Full
Disease Area: Cross Disease
Niamey, Niger

Global media foundation

Membership Type: Full
Disease Area: Cross Disease
Sunyani, Ghana

Shared Blessing Alliance (SBA)

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Vitiligo Support and Research Group

Membership Type: Full
Disease Area: Vitiligo
Holguin City, Cuba

Health Improvement and Population Safety Movement (HIPS Movement)

Membership Type: Full
Disease Area: Cross disease
Limbe, Cameroon

Association of Patients with Asthma, Allergies and Atopic Dermatitis – AAA Association

Membership Type: Full
Disease Area: Cross disease
Sarajevo, Bosnia and Herzegovina

Esperantra Centro

Membership Type: Full
Disease Area: Cross disease
Huancayo, Peru

LINDA AFYA SOCIETY

Membership Type: Associate
Disease Area: Cross disease
Nairobi, Kenya

Hope for Cancer Kids (HCK)

Membership Type: Full
Disease Area: Specific Disease Area, Childhood Cancer
Ruiru, Kenya

PANCYPRIAN ASSOCIATION OF RARE GENETIC DISEASES UNIQUE SMILES

Membership Type: Full
Disease Area: Cross Disease
Nicosia, Cyprus

Botswana Organisation for Rare Diseases (BORDIS)

Membership Type: Full
Disease Area: Cross Disease
Gaborone, Botswana

AFRH – Association Française pour la Recherche sur l’Hidrosadénite

Membership Type: Full
Disease Area: Specific Disease Area, Hidradenitis Suppurativa / Maladie de Verneuil
Saint Benoit, France

Patient Voice Partners

Membership Type: Associate
Disease Area: Cross Disease
Calgary, Canada

BALD GIRLS DO LUNCH, Inc

Membership Type: Full
Disease Area: Specific Disease Area, Alopecia Areata
New York, USA

Public Health Education Liaison and Advocacy (PHELA) Foundation

Membership Type: Full
Disease Area: Cross Disease
Johannesburg, South Africa

NORDMASEP

Membership Type: Full
Disease Area: Specific Disease Area, Multiple sclerosis(MS)
Rabat, Morocco

Lifeline for Childhood Cancer Ghana

Membership Type: Full
Disease Area: Specific Disease Area, childhood cancers
Accra, Ghana

Hope & Courage International

Membership Type: Full
Disease Area: Supports children battling cancer and other life- limiting illnesses
Nairobi, Kenya

Public Health Initiative

Membership Type: Associate
Disease Area: Cross Disease
Kathmandu, Nepal

Confraternity of Patients Kenya (Cofpak)

Membership Type: Full
Disease Area: Cross Disease
Kenya

Epilepsy Warriors Foundation

Membership Type: Full
Disease Area: Epilepsy
Limbe, Malawi

Cancer Survivors Quest

Membership Type: Full
Disease Area: Cancer
Limbe, Malawi

Partnership to Fight Chronic Disease

Membership Type: Full
Disease Area: Cross Disease
Washington, DC USA

Nyankonton Aid Foundation

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Thalassemia Foundation Ghana

Membership Type: Full
Disease Area: Thalassemia and sickle cell
Kumasi, Ghana

Tim Africa Aid Ghana

Membership Type: Full
Disease Area: Cross Disease
Accra, Ghana

FUNDACION SAYANI

Membership Type: Full
Disease Area: Cross Disease
San Salvador De JUJUY, Brazil

Vaincre Dunnigan

Membership Type: Full
Disease Area: Cross Disease
Saint Joseph, France

Saudi Patient Experience Club under Saudi Health Administration Association

Membership Type: Full
Disease Area: Cross Disease
Riyadh, Saudi Arabia

Unidos pela Vida – Brazilian Institute for Cystic Fibrosis Care

Membership Type: Full
Disease Area: Cystic Fibrosis
São Paulo, Brazil

National Kidney Foundation

Membership Type: Full
Disease Area: Kidney diseases
Selangor, Malaysia

Pakistan Down Syndrome Association (PDSA)

Membership Type: Full
Disease Area: Cross diseases
Karachi, Pakistan

Acufade

Membership Type: Full
Disease Area: Cross diseases
Santa Cruz de Tenerife, Spain

Estonian Stroke Patients Society

Membership Type: Full
Disease Area: Brain
Tallinn, Estonia

Hidradenitis Suppurativa Australia

Membership Type: Associate
Disease Area: Hidradenitis Suppurativa Australia and advocacy, awareness and education around this
Queensland, Australia

Greek Carers Network Epioni

Membership Type: Associate
Disease Area: Cross Disease
Athens, Greece

Down Syndrome Foundation Uganda

Membership Type: Full
Disease Area: Down Syndrome
Kampala, Uganda

The Josiah Centre

Membership Type: Associate
Disease Area: Cerebral Palsy
Accra, Ghana

MD Healthcare

Membership Type: Associate
Disease Area: Cross Disease
Birmingham, United Kingdom

ASOCIACION DE PACIENTES CON ANGIOEDEMA HEREDITARIO DEL PERU

Membership Type: Full
Disease Area: ENFERMEDAD RARA / ANGIOEDEMA HEREDITARIO
Lima, Peru

Organización de Pacientes con Hipertensión Pulmonar

Membership Type: Full
Disease Area: Cross Disease
Lima, Peru

King Hussein Cancer Foundation

Membership Type: Full
Disease Area: Cancer
Amman, Jordan

Universidad del paciente y la familia

Membership Type: Associate
Disease Area: Cross Disease
Barcelona, Spain

Sree Renga Hospital

Membership Type: Associate
Disease Area: Cross Disease
Tamil Nadu, India

FEMINA M-Association for help and support of patients with gynecologic diseases

Membership Type: Full
Disease Area: Gynecological diseases with special accent on gynecologic malignancies
Skopje, North Macedonia

Cyprus Stroke Association

Membership Type: Full
Disease Area: Stroke
ALEXANDROU PAPAGOU Cyprus

Nepal Stroke Association

Membership Type: Full
Disease Area: Stroke
Bhairahawa, Nepal

Thalassaemia & Sickle Cell Society of Bangalore

Membership Type: Full
Disease Area: Cross Disease, Thalassaemia Sickle Cell
Karnataka, India

PANHELLENIC HEART DISEASE ASSOCIATION

Membership Type: Full
Disease Area: CARDIOVASCULAR HEART DISEASE (CVD)
Athens, Greece

ASSOCIAÇÃO AÇÃO AVC

Membership Type: Full
Disease Area: AVC – STROKE
Pajuçara, Maceió – AL, Brazil

NON COMMUNICABLE DISEASES ALLIANCE KENYA

Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

Cyprus Federation of Patients’ Associations

Membership Type: Full
Disease Area: Cross Disease
Nicosia, Cyprus

National Organization of Persons with Disabilities of Serbia (NOOIS)

Membership Type: Full
Disease Area: Cross Disease
Belgrade, Serbia

FNAAF

Membership Type: Associate
Disease Area: Cross Disease
Bordeaux, France

HOPE Qatar Centre for Special Needs

Membership Type: Associate
Disease Area: Cross Disease
Doha, Qatar

Egyptian Thalassemia Association ETA

Membership Type: Full
Disease Area: Thalassaemia
Qena, Egypt

MYELOMA EURONET ROMANIA

Membership Type: Full
Disease Area: Cross Disease
Bucharest, Romania

brainstrust – the brain cancer people

Membership Type: Full
Disease Area: Brain cancer – primary and secondary
Portsmouth, United Kingdom

Global Healthy Living Foundation (GHLF)

Membership Type: Full
Disease Area: Cross Disease
New York, USA

Bhutan Kidney Foundation

Membership Type: Full
Disease Area: Cross Disease
Thimphu, Bhutan

GIST Cancer UK

Membership Type: Full
Disease Area: Gastro-Intestinal Stromal Tumours (GISTs)
London, United Kingdom

Scleroderma Awareness Philippines (SAP) registered as Systemic Sclerosis Filipinas Inc. (SSFI)

Membership Type: Full
Disease Area: Scleroderma
Philippines

Connecting Patients, Families and Medical Organizations

Membership Type: Full
Disease Area: Cross Disease
Japan

Hong Kong Psoriasis Patients Association

Membership Type: Full
Disease Area: Psoriasis
Sheung Wan, Hong Kong

Albinism Fellowship of Australia

Membership Type: Full
Disease Area: Albinism
Australia

Bhutan Cancer Society

Membership Type: Full
Disease Area: Cancer
Thimphu, Nepal

Vietnam Psoriasis Association PSORVIET

Membership Type: Full
Disease Area: Cross Disease
Dong Da dist., Viet Nam

Vietnam Vitiligo Association

Membership Type: Full
Disease Area: Vitiligo
Dong Da dist., Viet Nam

Shweta Association

Membership Type: Full
Disease Area: Vitiligo
Pune, India

Eczema Association of Australasia Inc

Membership Type: Full
Disease Area: Atopic eczema
Queensland, Australia

Rare Skin Disease Nepal

Membership Type: Associate
Disease Area: Cross Disease
Kathmandu, Nepal

THE HONEYBEE CHILDRENS CLINIC

Membership Type: Associate
Disease Area: Cross Disease
HURLINGHAM, Kenya

Institute of Neurosciences Kolkata

Membership Type: Associate
Disease Area: Only superspeciality and Comprehensive Neuro Care hospital in Eastern India aimed at providing dedicated, affordable and yet highly skilled care in Neurology, Neurosurgery, Pediatric Neurology, Neuro-Psychiatry, Neuro-Radiology, Neuro-Intervention and Neuro-Rehabilitation
Kolkata, India

China Chronic Skin Disease Fund

Membership Type: Full
Disease Area: Chronic Skin Disease
Beijing, China

Pahuja Trust for Blood Disorders and Thalassemia

Membership Type: Full
Disease Area: Thalassemia
New Delhi, India

Africa Cancer Foundation

Membership Type: Full
Disease Area: Cancer
Kenya

Lok Bandhu Raj Narayan Combined Hospital Lucknow

Membership Type: Associate
Disease Area: Cross Disease
Lucknow, India

Axios International

Membership Type: Associate
Disease Area: Cross Disease
Dubai, United Arab Emirates

Center of Excellence for Patient Safety and Quality

Membership Type: Associate
Disease Area: Cross Disease
Indonesia

General authority for Healthcare accreditation and regulations GAHAR

Membership Type: Associate
Disease Area: Cross Disease
Egypt

Remote Health Reach

Membership Type: Associate
Disease Area: Cross Disease
Paynesville, Montserrado County, Liberia

Pseudomyxoma Survivor
Membership Type: Full
Disease Area: Appendix cancers, including pseudomyxoma peritonei
Warwick, United Kingdom

Psoriasis Association of Singapore
Membership Type: Full
Disease Area: Psoriatic Disease
Novena, Singapore

Manzil Home Healthcare Services
Membership Type: Associate
Disease Area: Cross Disease
Novena, Singapore

VIPOC – Vitiligo International Patient Organizations Committee
Membership Type: Full
Disease Area: Vitiligo
Paris, France

QUAD A ( The American Association for Accreditation of Ambulatory Surgery Facilities )
Membership Type: Associate
Disease Area: Cross Disease
Illinois, USA

Sankalpa Voluntary Organization
Membership Type: Full
Disease Area: Thalassemia and Sickle Cell disease
Khammam,India

Psoriasis Australia Inc
Membership Type: Full
Disease Area: Psoriatic Disease
Victoria, Australia

Bahrain MS Patients society
Membership Type: Full
Disease Area: Multiple Sclerosis
Manama, Kingdom of Bahrain

Yemen Society for Thalassemia & Genetic Blood Disorders
Membership Type: Full
Disease Area: Patients with thalassemia and hereditary blood disorders
Sana’a, Yemen

The National Multiple Sclerosis Society
Membership Type: Full
Disease Area: Multiple Sclerosis
Abu Dhabi, UAE

BASMA Association for Supporting Children with Cancer and Their Families
Membership Type: Full
Disease Area: Pediatric Cancer
Damascus, Syria

Health Care Foundation Zambia
Membership Type: Full
Disease Area: Cross Disease
Lusaka, Zambia

Empowerment for Sustainable Livelihood
Membership Type: Associate
Disease Area: Cross Disease
Accra, Ghana

Patient Rights Watch Ghana
Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Hajo Non-Communicable Diseases Prevention Initiative (Hajo-NCDPI)
Membership Type: Associate
Disease Area: Cross Disease
Abuja, Nigeria

FUNDACION FOMENTO DE DESARROLLO TERESA DE JESUS IAP
Membership Type: Full
Disease Area: Colon Cancer
Ciudad de México

Medicure Trauma Centre-Nabumali, Mbale
Membership Type: Associate
Disease Area: Cross Disease
Mbale, Uganda

Hadley
Membership Type: Full
Disease Area: Vision Loss
Chicago, USA

MindFreedom Ghana (MFGh)
Membership Type: Full
Disease Area: Mental Health
Accra, Ghana

Yemen association for care & rehabilitation blind
Membership Type: Associate
Disease Area: Cross Disease
Sana’a, Yemen

Sexual Health Foundation
Membership Type: Full
Disease Area: Prostate Cancer, Sexual Health Diseases
Kumasi, Ghana

Union Nationale des Aveugles et Malvoyants du Congo (UNAMAC)
Membership Type: Full
Disease Area: Cécité
Ekadouma, Congo

International Agency for the Prevention of Blindness
Membership Type: Full
Disease Area: Vision Impairment
London, UK

AFAF (Association Française de l’Ataxie de Friedreich)
Membership Type: Full
Disease Area: Friedreich’s Ataxia
Paris, France

EPIDERMOLYSIS BULLOSA MANAGEMENT SERVICES
Membership Type: Full
Disease Area: EPIDERMOLYSIS BULLOSA
Putrajaya, Malaysia

CEREBRUM2007
Membership Type: Full
Disease Area: Acquired brain injury
Prague, Czech Republic

Heal Canada
Membership Type: Full
Disease Area: Cross Disease
Toronto, Canada

Child and Youth Care
Membership Type: Full
Disease Area: Non communicable disease
Harare, Zimbabwe

Nest Of Hope Advocacy and Support Community
Membership Type: Full
Disease Area: Cancer
Abuja, Nigeria

Lebanese Center for Palliative Care – Balsam
Membership Type: Associate
Disease Area: Cross Disease
Beirut, Lebanon

Retina Australia
Membership Type: Full
Disease Area: Eye Diseases
Melboune, Australia

KENYA UNION OF THE BLIND
Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

MakeDeathsCount (MDC)
Membership Type: Associate
Disease Area: Cross Disease
Elizabeth, New Jersy, USA

CanAge: Canada’S National Seniors’ Advocacy Organization
Membership Type: Full
Disease Area: Cross Disease
Toronto, Canada

Alliance Of Patients Associations Of Serbia
Membership Type: Full
Disease Area: Cross Disease
New Belgrade, Serbia

The Chronic Viral Hepatitis Patients Association – B18
Membership Type: Full
Disease Area: Specific Disease Area, Chronic Viral
Banja Luka, Bosnia and Herzegovina

AME & CDD
Membership Type: Full
Disease Area: Cross Disease
São Paulo, Brazil

We Want Life
Membership Type: Full
Disease Area: Cross Disease
Agouza, Egypt

Network Of People Impacted By Cancer In Nigeria (Nepicin)
Membership Type: Full
Disease Area: Specific Disease Area, Cancer
Abuja, Nigeria

Oscar’S Angels France
Membership Type: Full
Disease Area: Cross Disease
Blagnac, France

Oscar’S Angels Italia Odv Ets
Membership Type: Full
Disease Area: Cross Disease
Roma, Italy

Pulse Center For Patient Safety Education & Advocacy
Membership Type: Full
Disease Area: Cross Disease
Wantagh, USA

Young People For Positive Change Zambia

Membership Type: Associate
Disease Area: Cross Disease
MUFULIRA, Zambia

Korea Youth Cancer Association
Membership Type: Full
Disease Area: Cross Disease
Seoul, Republic of Korea

Vitiligo Support And Awareness Foundation Vitsaf
Membership Type: Full
Disease Area: Cross Disease
Lagos, Nigeria

Fundación Colombiana Para La Fibrosis Quistica – Fiquires
Membership Type: Full
Disease Area: Specific Disease Area, Enfermedades respiratorias huérfanas, fibrosis quistica
Bogotá D.C-., Colombia

Fundación Colombiana Para Cáncer De Pulmón, Asma, Epoc Y Otras Enfermedades Respiratorias – Inspirat
Membership Type: Full
Disease Area: Specific Disease Area, Enfermedades respiratorias y oncologicas
Bogotá D.C-., Colombia

Familias Ame Perú
Membership Type: Full
Disease Area: Specific Disease Area, Atrofia Muscular Espinal
Trujillo, Peru

Public Foundation Together Against Cancer
Membership Type: Full
Disease Area: Specific Disease Area, Oncology
Bishkek, Kyrgyzstan

Fundación Grupo De Apoyo Hap Carabobo
Membership Type: Full
Disease Area: Cross Disease
Valencia Edo Carabobo Venezuela, Venezuela (Bolivarian Republic of)

Vitiligo Support And Awareness Foundation Ghana
Membership Type: Full
Disease Area: Specific Disease Area, Vitiligo
Accra, Ghana

Asbestos Disease Awareness Organization (Adao)
Membership Type: Full
Disease Area: Specific Disease Area, Asbestos caused cancers such as mesothelioma
Redondo Beach, USA

Educating Girls And Young Women For Development-Egyd
Membership Type: Associate
Disease Area: Cross Disease
Kasama, Zambia

Hungerndthirst Foundation
Membership Type: Full
Disease Area: Cross Disease
Amsterdam, Netherlands

Myeloma Friends Charitable Trust
Membership Type: Full
Disease Area: Specific Disease Area, Multiple Myeloma
Mumbai, India

Africa Healthcare Network
Membership Type: Full
Disease Area: Specific Disease Area, Acute Kidney injury and Chronic Kidney Disease/ Hemodialysis and peritoneal dialysis
Kigali, Rwanda

Royal Patches
Membership Type: Full
Disease Area: Specific Disease Area, Vitiligo
Nairobi, Kenya

PORMIKI
Membership Type: Associate
Disease Area: Cross Disease
Tangerang, Indonesia

Stevens-Johnson Syndrome Canada
Membership Type: Full
Disease Area: Stevens-Johnson Syndrome / Toxic Epidermal Necrolysis (SJS/TEN)
Brantford, Canada

Uganda Non Communicable Diseases Alliance
Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

A Pen for Africa
Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Tshimollo home
Membership Type: Associate
Disease Area: Cross Disease
Hamanskraal, South Africa

China Mutual Assistance of Psoriasis Patients
Membership Type: Full
Disease Area: Specific Disease Area, psoriasis
Beijing, China

Sickle Cell Uhuru Trust (SCUT)
Membership Type: Full
Disease Area: Specific Disease Area, SICKLE CELL DISEASE
Nairobi, Kenya

Ebenezer Women Social Entrepreneurship Trust
Membership Type: Full
Disease Area: Cross Disease
Gweru, Zimbabwe

Chithuen Phendhey Association
Membership Type: Full
Disease Area: Cross Disease
Thimphu, Bhutan

Symbol of hope warriors
Membership Type: Full
Disease Area: Specific Disease Area, majority of the members are cancer patients or children whose parents lost the battle to cancer
Nairobi, Kenya

South African Psoriasis Association
Membership Type: Full
Disease Area: Specific Disease Area, Psoriatic disease
Cape Town, South Africa

Jen Ai Foundation
Membership Type: Full
Disease Area: Cross Disease
Taichung City, Taiwan

Psoriasis Indonesia (Yayasan Bercak Merah Indonesia)
Membership Type: Full
Disease Area: Specific Disease Area, Psoriatic Disease
Jakarta Timur, Indonesia

Psoriasis Association of Kenya
Membership Type: Full
Disease Area: Specific Disease Area, Psoriasis
Nairobi, Kenya

IBD Patient Support Foundation (India)
Membership Type: Full
Disease Area: Specific Disease Area, Inflammatory Bowel Disease
Bangalore, India

National Association of Non-Governmental Organizations (NANGO)
Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

Mpumalanga Mental Health Society
Membership Type: Full
Disease Area: Cross Disease
Middelburg, South Africa

Instituto Nacional de Saúde
Membership Type: Associate
Disease Area: Cross Disease
BIssau, Guinea-Bissau

Cure Blau Syndrome Foundation
Membership Type: Full
Disease Area: Specific Disease Area, We do focus specifically on Blau syndrome – however, this is a rare auto-inflammatory condition that affects multiple organs so we also work directly with Rare Disease advocacy groups and with researchers on topics such as Uveitis or granulomous diseases etc
Victoria, Canada

Fundacja Carita im. Wieslawy Adamiec
Membership Type: Full
Disease Area: Specific Disease Area, multiple myeloma
Wroclaw, Poland

Mohan Foundation
Membership Type: Full
Disease Area: Specific Disease Area, Promoting Organ donation & transplantation and supporting organ failure patients
Chennai, India

Federación peruana de enfermedades raras
Membership Type: Full
Disease Area: Cross Disease
Lima, Peru

Fadhili Cancer Support Organization
Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

Renal Patients Society of Kenya
Membership Type: Full
Disease Area: Specific Disease Area, Chronic Kidney Disease
Nairobi, Kenya

International Alliance of ALS/MND Associations
Membership Type: Full
Disease Area: Specific Disease Area, ALS MND
Coldwater, Canada

V Care Foundation
Membership Type: Full
Disease Area: Cancer
Mumbai, India

Tumaini Sickle Cell Organization
Membership Type: Full
Disease Area: Specific Disease Area, SICKLE CELL DISEASE
Kisumu, Kenya

Союз Пациентских сообществ
Membership Type: Full
Disease Area: Cross Disease
Бишкек, Kyrgyzstan

MOWHA(Women@40)
Membership Type: Full
Disease Area: Cross Disease, HIV. TB and MALARIA
Kampala, Uganda

Shepherd Best Care Initiative Taraba(SBCI)
Membership Type: Full
Disease Area: Cross Disease
Takum, Nigeria

Cankids Kidscan
Membership Type: Full
Disease Area: Specific Disease Area, Childhood Cancer
Delhi, India

My Skin Global
Membership Type: Associate
Disease Area: Cross Disease
Nairobi, Kenya

Solace Cancer Foundation & Solace Cancer Community Based Organization
Membership Type: Full
Disease Area: Cross Disease
Eldoret, Kenya

Association Des Malades Atteints De Leucémies
Membership Type: Full
Disease Area: Specific Disease Area, Leukemias and blood diseases
Marrakech, Morocco

Lélek-Zet Egyesület
Membership Type: Full
Disease Area: Specific Disease Area, Lung Cancer
Budapest, Hungary

Plan Health Advocacy And Development Foundation (Plan Foundation)
Membership Type: Full
Disease Area: Specific Disease Area, HIV, Hepatitis, Tuberculosis, Disabilities
Ibadan, Nigeria

Youth On The Move
Membership Type: Full
Disease Area: Specific Disease Area, Epilepsy and related neurological conditions
Nairobi, Kenya

The E-Center For Women’S Cancers & Maternal Health
Membership Type: Full
Disease Area: Specific Disease Area, Non-communicable diseases (NCDs+), including mental health disorders.
Johannesburg , South Africa

Stroke Association Of Kenya
Membership Type: Full
Disease Area: Cross Disease Area
Nairobi, Kenya

Apn – Associação Portuguesa De Neuromusculares
Membership Type: Full
Disease Area: Cross Disease Area
Porto, Portugal

Henzo Kenya
Membership Type: Full
Disease Area: Specific Disease Area, Hematological malignancies eg; Leukemia, Myeloma and Lymphomas
Nairobi, Kenya

Hope On Feet CBO
Membership Type: Full
Disease Area: Specific Disease Area, Cancer & NCDs
Nairobi, Kenya

Stowelink Foundation
Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

Bahrain Society For Scd Patients
Membership Type: Full
Disease Area: Specific Disease Area, Sickle cell
Isa Town, Bahrain

Instituto Camaleão
Membership Type: Full
Disease Area: Specific Disease Area, cancer (all types)
Porto Alegre, Brazil

Kayula Childhood Cancer Foundation
Membership Type: Full
Disease Area: Specific Disease Area, Childhood cancers and blood disorders.
Lusaka, Zambia

Mission Society Care For The Infected And Affected With HIV/Aids Network
Membership Type: Full
Disease Area: Cross Disease
Gauteng, South Africa

Fundacion Sicklemia
Membership Type: Full
Disease Area: Specific Disease Area, Drepanocitosis
Cartagena de indias, Colombia

Suomen Sklerodermayhdistys Ry
Membership Type: Full
Disease Area: Specific Disease Area, systemic sclerosis and scleroderma
Salo, Finland

Multiple Sclerosis South Africa
Membership Type: Full
Disease Area: Specific Disease Area, Multiple Scletosis
Hermanus, South Africa

Narcolepsy Africa Foundation
Membership Type: Full
Disease Area: Specific Disease Area, Multiple Scletosis
Nairobi, Kenya

Tunisian Hemophilia Association
Membership Type: Full
Disease Area: Specific Disease Area, Hemophilia and other hereditary bleeding disorders
Tunis, Tunisia

Rare Diseases South Africa Npc
Membership Type: Full
Disease Area: Cross Disease
Johannesburg, South Africa

Asociacion De Desordenes Del Ciclo Urea Y Enfermedades Metabolicas Peru
Membership Type: Full
Disease Area: Cross Disease Area
Luma, Peru

Eyomphakathi Foundation
Membership Type: Full
Disease Area: Specific Disease Area
Umlazi, South Africa

Corporacion De Ayuda Al Niño Con Artritis Cronica Juvenil Anacroj
Membership Type: Full
Disease Area: Cross Disease
Santiago, Chile

Diabetes & Limb Salvage Foundation
Membership Type: Full
Disease Area: Cross Disease
Lagos, Nigeria

Hope For Kids Zimbabwe
Membership Type: Associate
Disease Area: Cross Disease
Mutare, Zimbabwe

Asociacion Costarricense De Hipertension Pulmonar
Membership Type: Full
Disease Area: Cross Disease
San Jose, Costa Rica

Federacion Costarricense De Enfermedades Raras
Membership Type: Full
Disease Area: Cross Disease
San Jose, Costa Rica

Funarp – Panamanian Rheumatoid Arthritis Foundation
Membership Type: Full
Disease Area: Specific Disease Area
Panama, Panama

Multiple Sclerosis Namibia (Wo293)
Membership Type: Full
Disease Area: Specific Disease Area
Windhoek, Namibia

Thalassemia And Sickle Cell Society
Membership Type: Full
Disease Area: Specific Disease Area
Hyderabad, India

Foro Español De Pacientes
Membership Type: Full
Disease Area: Cross Disease
Madrid, Spain

Asociación Salvadoreña Para La Prevención Del Cáncer
Membership Type: Full
Disease Area: Specific Disease Area
San Salvador, El Salvador

Scdp Community Of Tanzania
Membership Type: Full
Disease Area: Specific Disease Area
Dar es salaam, United Republic of Tanzania

Association Of Rheumatic Patients For Targeted Therapy
Membership Type: Full
Disease Area: Specific Disease Area
Budapest, Hungary

Community And Family Aid Foundation-Ghana
Membership Type: Full
Disease Area: Cross Disease
Accra, Ghana

Medindia4U Pvt Ltd
Membership Type: Associate
Disease Area: Cross Disease
Chennai, India

Nile Health
Membership Type: Associate
Disease Area: Cross Disease
Inglewood, Australia

Cancer Survivors Association Of Kenya
Membership Type: Full
Disease Area: Specific Disease Area
Nairobi, Kenya

Theta Uganda
Membership Type: Associate
Disease Area: Cross Disease
Kampala, Uganda

Cancer Care Egypt Foundation
Membership Type: Full
Disease Area: Cross Disease
Cairo, Egypt

Rahma Foundation Algeria – Rfa
Membership Type: Full
Disease Area: Cross Disease
Boufarik, Algeria

National Organization Of Users And Survivors Of Psychiatry In Rwanda (Persons With Psychosocial Disability (Nouspr)
Membership Type: Full
Disease Area: Cross Disease
Kigali, Rwanda

Zivai Community Empowermenttrust-Zicet
Membership Type: Associate
Disease Area: Cross Disease
Mutare, Zimbabwe

Mission Society Care For The Infected And Affected With Hiv/Aids Network
Membership Type: Full
Disease Area: Cross Disease
Gauteng, South Africa

BMT Support Foundation
Membership Type: Full
Disease Area: Stem cell therapies
Pune, India

Midlands Aids Caring Organisation
Membership Type: Associate
Disease Area: Cross Disease
Zvishavane, Zimbabwe

Armenian Hematology Association
Membership Type: Associate
Disease Area: Cross Disease
Yerevan, Armenia

Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)
Membership Type: Full
Disease Area: Cross Disease
Windsor, USA

Stowelink Foundation
Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

FEDERACION ECUARORIANA DE ENFERMEDADES RARAS O POCO FRECUENTES FERPOF
Membership Type: Full
Disease Area: Cross Disease
Quito, Ecuador

Uganda Child Cancer Foundation (UCCF)
Membership Type: Full
Disease Area: Cancer
Kampala, Uganda

SENSAR
Membership Type: Full
Disease Area: Cross Disease
Alcorcón, Spain

Hope for Rare Foundation
Membership Type: Full
Disease Area: Cross Disease
Zhejiang, China

Diabetes South Africa
Membership Type: Full
Disease Area: Diabetes, Hypertension, Hypercholestrolemia
Cape Town, South Africa

Obi Ogbonnia Sickle Cell Foundation
Membership Type: Full
Disease Area: Sickle Cell Disease
Abuja, Nigeria

EMUR Esclerosis Múltiple Uruguay
Membership Type: Full
Disease Area: Esclerosis Múltiple
Montevideo, Uruguay

Association Béninoise des Hémophiles ABH
Membership Type: Associate
Disease Area: L’hémophilie
Cotonou, Benin

Epilepsy Support Association Uganda
Membership Type: Full
Disease Area: Epilepsy
Kampala, Uganda

Empower India
Membership Type: Full
Disease Area: Cross Disease
Thoothukudi, India

Psoriasis Association of Malaysia
Membership Type: Full
Disease Area: Specific Disease Area, Psoriatic Diseases
Kuala Lumpur, Malaysia

Gloria’s Cancer Foundation
Membership Type: Full
Disease Area: Specific Disease Area, Cancer
Abuja FCT, Nigeria

Associazione Collagene Vi Italia Aps
Membership Type: Full
Disease Area: Cross Disease
San Pietro di Feletto, Italy

Sachin Sarcoma Society
Membership Type: Full
Disease Area: Cross Disease
Delhi, India

Hae South Africa
Membership Type: Full
Disease Area: Hereditary Angioedema
Benoni, South Africa

Rare Diseases Sa
Membership Type: Full
Disease Area: Rare Diseases
Johannesburg, South Africa

South African Cystic Fibrosis Association
Membership Type: Full
Disease Area: Cystic Fibroses
Johannesburg, South Africa

كانسر فايترز لدعم مرضي السرطان
Membership Type: Full
Disease Area: Cancer
القاهره, Egypt

The South African Society Of Ostomates
Membership Type: Full
Disease Area: Ostomy
Cape Town, South Africa

Coloplast
Membership Type: Associate
Disease Area: Cross Disease
Sandston, South Africa

Pakistan Society For Rehabilitation Of Differently Abled (Psrd)
Membership Type: Associate
Disease Area: Physical disabilities
Lahore, Pakistan

Kenya Mended Hearts Patients Association
Membership Type: Full
Disease Area: Heart Disease
Nairobi, Kenya

Hossanah Help Foundation
Membership Type: Full
Disease Area: Cross Disease
Ogun State, Nigeria

National Fabry Disease Foundation
Membership Type: Full
Disease Area: Fabry Disease
Hillsborough, USA

Rays Of Hope Support Initiative(Rohsi)
Membership Type: Full
Disease Area: Cross Disease
Ibadan, Nigeria

Blue Circle Diabetes Foundation
Membership Type: Full
Disease Area: Diabetes
Mumbai, India

Members WPA - World Patients Alliance

Stay in touch