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Members WPA - World Patients Alliance

A Cure In Sight
Membership Type: Full
Disease Area: Ocular melanoma/eye cancer
North Carolina, USA

AAN Associates

Membership Type: Associate
Disease Area: Cross Disease
Islamabad, Pakistan

Acromegalia CDMX

Membership Type: Full
Disease Area: Acromegalia
Mexico City, Mexico

Act of Random Kindness Foundation International

Membership Type: Associate
Disease Area: Cross Disease
Gboko, Nigeria

Action Contre le Cancer Infantile au Burkina

Membership Type: Associate
Disease Area: Cancer
Bobo-Dioulasso, Burkina Faso

Action for Humane Hospitals

Membership Type: Full
Disease Area: Cross Disease
Douala, Cameroun

Active Help Organization (AHO)

Membership Type: Full
Disease Area: Cross Disease
LAHORE, PAKISTAN

ADCUM – Asociación de Desórdenes del Ciclo de la Urea y Metabólicas.

Membership Type: Full
Disease Area: Enfermedades del ciclo de la urea
Lima, Peru

ADCY5.org

Membership Type: Full
Disease Area: ADCY5-related dyskinesia
San Diego, USA

Advocacy & Awareness for Immune Disorders Association (AAIDA)

Membership Type: Full
Disease Area: Primary Immunodeficiency, Secondary Immunodeficiency, Autoimmune conditions, Immune dysregulation
Charlotte, USA

Advocacy for medical malpractice victims

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Advocacy on Human Development

Membership Type: Full
Disease Area: Cross Disease
Luanshya, Zambia

AEAL, ASOCIACION ESPAÑOLA DE AFECTADOS POR LINFOMA, MIELOMA Y LEUCEMIA

Membership Type: Full
Disease Area: ONCOHEMATOLOGICAL DISEASES
Madrid, Spain

AFAPADEA (Asoc de Apoyo a los Familiares de Pacientes con Alzheimer y Otras Enfermedades Demenciales)

Membership Type: Full
Disease Area: Alzheimer and other types of dementia
La chorrera, Panama

Afghanistan Cancer Foundation

Membership Type: Full
Disease Area: Cancers
Kabul, Afghanistan

Africa Hepatitis Initiative (AHI)

Membership Type: Full
Disease Area: Viral Hepatitis
Kampala, Uganda

AGATHE WEHRLI MENTORING CHAIR AWMC

Membership Type: Full
Disease Area: Cross Disease
Lagos, Nigeria.

Agedcare Maldives

Membership Type: Full
Disease Area: Ageing Advocacy
Vaagali, Maldives

AGHA Uganda

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

AIDS Prevention Association of Pakistan (APAP)

Membership Type: Full
Disease Area: HIV & AIDS
LAHORE, PAKISTAN

Aimed Alliance

Membership Type: Full
Disease Area: Cardiovascular Disease
Washington, DC USA

Akphivath Neary Khmer Organization

Membership Type: Full
Disease Area: Cross Disease
Pursat town, Cambodia

Al Oun for Alzheimer’s Patients Care Association

Membership Type: Full
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Amman, Jordan

ALIANZA IBEROAMERICANA DE ENFERMEDADES RARAS – ALIBER

Membership Type: Full
Disease Area:Rare Disease
Murcia, Spain

Allergy & Asthma Network

Membership Type: Full
Disease Area: allergy, asthma, eczema, urticaria, COPD
Washington, USA

Alliance for Aging Research

Membership Type: Full
Disease Area: Aging Research
Washington DC, USA

Alzheimer Bulgaria Association

Membership Type: Full
Disease Area: Alzheimer’s and other dementias
Sofia, Bulgaria

Alzheimer Croatia (Full name: Alzheimer disease society Croatiasociety

Membership Type: Full
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Vlaška, Croatia

Alzheimer Society of Bangladesh(ASB)

Membership Type: Full
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Dhaka, Bangladesh

Alzheimer Udruženje AiR – Alzheimer BiH / Alzheimer Association A&R-Alzheimer BiH

Membership Type: Full
Disease Area: Dementia
Sarajevo, Bosnia and Herzegovina

ALZHEIMER’S PAKISTAN

Membership Type: Full
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
LAHORE, PAKISTAN

Alzheimer’s Disease and Related Dementias In Zambia-ADDIZ

Membership Type: Full
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Nakonde

American Chronic Pain Association

Membership Type: Full
Disease Area: Pain Management
San Francisco, USA

Américas Amigas

Membership Type: Full
Disease Area: Breast Cancer
State of São Paulo, Brazil

APBDRF

Membership Type: Full
Disease Area: APBD
New York, USA

APDP – Diabetes Portugal

Membership Type: Full
Disease Area: Diabetes
Lisbon, Portugal

Arrhythmia Alliance

Membership Type: Full
Disease Area: Cardiac arrhythmias
Warwickshire,

Asociación Civil de Síndrome de Prader-Willi del País

Membership Type: Full
Disease Area: sindrome de prader willi
Montivideo, Uruguay

Asociación Con L de Leucemia

Membership Type: Full
Disease Area: Cancer
San Borja, Peru

Asociación de Mujeres Solidarias Inc. (AMSI)

Membership Type: Full
Disease Area: Cancer de mama
Santo Domingo,

Asociacion de Talasemia Argentina (ATA)

Membership Type: Full
Disease Area: Thalassaemia
Cordoba, Argentina

Asociación Lupus Perú y Enfermedades Asociadas

Membership Type: Full
Disease Area: lupus
Lima, Peru

ASOCIACION MEXICANA DE SOBREVIVIENTES AL CANCER ONCOAYUDA A.C.

Membership Type: Associate
Disease Area: Emotional support
Mexico City, Mexico

Asociación Nacional Venciendo los Obstáculos de la Vida (ANASOVI)

Membership Type: Full
Disease Area: Cross Disease
San Jose, Costa Rica

Asociación Peruana de Epilepsia y Enfermedades Convulsivas

Membership Type: Full
Disease Area: Epilepsia
Lima, Peru

Asociación Peruana de Epilepsia y EnfermedadesConvulsivas

Membership Type: Full
Disease Area: Cross Disease
LAHORE, PAKISTAN

Asociación Peruana de Lupus

Membership Type: Full
Disease Area: Lupus
Lima, Peru

Asociación Procrece

Membership Type: Full
Disease Area: Sick from the defience of growth hormone and Rare Diseases.
Villa Nueva, Guatemala

Asociatia P.A.V.E.L.

Membership Type: Full
Disease Area: onco and haematologic pediatrics
Bucharest, Romania

ASPA cameroon

Membership Type: Full
Disease Area:Humanitarian Assistance
Mamfe, Cameroon

Associacao Mocambicana de Hemofilia e Outras Coagulopatias Congenitas

Membership Type: Full
Disease Area: Hemophilia and Other Congenital Coagulopaties
Santa Cruz,Mozambique

Association d’aide aux enfants cancéreux bechar

Membership Type: Associate
Disease Area: Cancer
Lahmar, Algeria

ASSOCIATION FANOMEZANA LMC

Membership Type: Associate
Disease Area: Chronic Myeloid Leukemia
Ambatondrazaka, Madagascar

Association Guinéenne pour la lutte contre le Cancer (AGUICAN)

Membership Type: Full
Disease Area: Cancer research in tropical area
Conakry, Guinee

Association Mauritanienne de lutte contre le Diabete (AMLCD)

Membership Type: Full
Disease Area: Diabete
Nouakchott, Mauritania

Association Nos Années de VIE (ANAVIE)

Membership Type: Associate
Disease Area: Ageing Advocacy
Lomé, Togo

Association of Diabetic Patients of Slovakia

Membership Type: Full
Disease Area:Diabetes Mellitus
Trnava, Slovakia

Association of doctors for practicing good clinical practice

Membership Type: Associate
Disease Area:Cross Disease
Skopje Republic, North Macedonia

Association of patients with rheumatic diseases of the Republic of Serbia – ORS

Membership Type: Full
Disease Area: Rheumatic and muskuloskeletal diseases
Belgrade, Serbia

association of people suffering from psoriasis and psoriatic disorders

Membership Type: Full
Disease Area:  Psoriasis and psoriatic arthritis
Sofia, Bulgaria

Associazione Nazionale Persone con Malattie Reumatologiche e Rare

Membership Type: Full
Disease Area: rheumatic and rare diseases of the immune system
lecce, Italy

ATUERU

Membership Type: Full
Disease Area: Enfermedades raras
Montivideo, Uruguay

Australian Patients Association

Membership Type: Full
Disease Area: Cross Disease
Victoria, Australia

Bamberg Advisors, LLC

Membership Type: Associate
Disease Area: Cross Disease
Georgia, USA

Bangladesh Women Health

Membership Type: Full
Disease Area: Reproductive Health Service Providor
Dhaka, Bangladesh

BCN PID Foundation

Membership Type: Associate
Disease Area: Primary immunodeficiencies
Barcelona, Spain

Belgian Brain Council

Membership Type: Full
Disease Area: Cross Disease
Brussels, Belgium

Beyond Vitiligo

Membership Type: Full
Disease Area: Vitiligo
Johnnesburg, South Africa

BORN A HERO, Research Foundation

Membership Type: Full
Disease Area: 15 FGFR Cranio Syndromes
Seattle, USA

Brazilian Pulmonary Hypertension and Related Diseases Association

Membership Type: Full
Disease Area: Cardiopulmonary diseases
São Paulo, Brasil

Breathing Bravely (respirando con valor)

Membership Type: Full
Disease Area: LUNG CANCER
Toluca, Mexico

Bridge the Gap – SYNGAP Education and Research Foundation

Membership Type: Full
Disease Area: SYNGAP1
Washington DC, USA

British Association of Skin Camouflage

Membership Type: Full
Disease Area: Skin Diseases
Chester, United Kingdom

Bulgarian Association for Patients’ Defense

Membership Type: Full
Disease Area: Cross Disease
Sofia, Bulgaria

Bulgarian lymphoma association

Membership Type: Full
Disease Area: Lymphoma and leukemia.
Sofia, Bulgaria

BURKINABE OBSERVATORY FOR HEALTHCARE QUALITY AND SAFETY

Membership Type: Full
Disease Area: Cross Disease
Ouagadougou, Burkina Faso

Cambodian Diabetes Association and its SIEM REAP BRANCH

Membership Type: Associate
Disease Area: Prevention, treatment and control of diabetes complications
Krong Siem Reap, Cambodia

Cambridge Rare Disease Network

Membership Type: Full
Disease Area: Rare Disease
Cambridge, United Kingdom

Canadian Continence Foundation

Membership Type: Full
Disease Area: Incontinence
Ontario, Canada

Canadian Hemophilia Society

Membership Type: Full
Disease Area: Bleeding Disorders
Montreal, Canada

Cancer Association of South Africa (CANSA)

Membership Type: Full
Disease Area: Cancer
Johannesburg, South Africa

Cancer Cafe

Membership Type: Full
Disease Area: Cancer (Non Communicable Diseases)
Nairobi, Kenya

Cancer NGOs’ Federation of Nepal(CANFED)

Membership Type: Full
Disease Area: Cancer
Kathmandu, Nepal

Cancer Warriors de Mexico, A.C.

Membership Type: Full
Disease Area: Cancer
Veracruz, Mexico

Celebrando la Vida

Membership Type: Full
Disease Area: Leucemia Mieloide Crónica, Leucemia Linfoblástica Aguda y Tumor del estroma intestinal
Santa Cruz, Bolivia

Centre for Initiative and Development (CFID)

Membership Type: Full
Disease Area: Viral Hepatitis (Liver disease)
Taraba State, Nigeria

CEPREME

Membership Type: Full
Disease Area: woman cancer
Bobadilla, Ecuador

Charcot-Marie-Tooth Association

Membership Type: Full
Disease Area: Charcot-Marie-Tooth Disease
New Jersey, USA

CHEN – patient fertiltiy association, Israel

Membership Type: Full
Disease Area: fertility and education toprevent it
Holon, Israel

Children’s Cancer Center of Lebanon

Membership Type: Full
Disease Area: Childhood Cancer
Beirut, Lebanon

Chinese Organization for rare disorders

Membership Type: Full
Disease Area: Rare Disorders
Beijing, China

Choroideremia Research Foundation

Membership Type: Full
Disease Area: Choroideremia
Massachusetts, USA

Chronic Pain Ireland

Membership Type: Full
Disease Area: Chronic pain
Dublin, Ireland

Clusterbusters, Inc

Membership Type: Full
Disease Area: Cluster Headaches
Chicago, USA

CMTC-OVM

Membership Type: Full
Disease Area: CMTC and Other Vascular Malformations
Kapelweg, Netherland

Coeliac Association – Malta

Membership Type: Full
Disease Area: Coeliac disease
Sliema,Malta

Community Agency for Rural Development (CAD)

Membership Type: Full
Disease Area: Healthcare
Yangon, Myanmar

Community Health And Information Network

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Corporación de Ayuda a Pacientes con Enfermedad Hipofisaría

Membership Type: Full
Disease Area: Cross Disease
Santiago, Chile

Corporación Nacional Maxi-vida Chile

Membership Type: Full
Disease Area: Lukymia & GIST
Santiago, Chile

Croatian Association for Liver Diseases “Hepatos"

Membership Type: Full
Disease Area: Liver Diseses
Split, Crotia

CRPS Bubdesverband Deutschland e.V.

Membership Type: Full
Disease Area: CRPS – Complex regional pain syndrome
Cologne, Germany

Cure VCP Disease, Inc.

Membership Type: Full
Disease Area: IBMPFD, VCP disease, MSP-1
Georgia, USA

Cyprus Association of Inherited Metabolic Diseases, for patients and friends, ‘Aspida Zois’

Membership Type: Full
Disease Area: Inherited Metabolic Diseases
Ypsonas-Limassol, Cyprus

Cyprus Multiple Sclerosis Association

Membership Type: Full
Disease Area: Multiple Sclerosis
Nicosia, Cyprus

Czech Association of Patients

Membership Type: Full
Disease Area: Cancer
Prague, Czech Republic

Dăruiește Viață

Membership Type: Full
Disease Area: Oncology (Pediatric and Adult)
Bucharest, Romania

Daryeelka Maanka Burao

Membership Type: Full
Disease Area: Mental health
London, United Kingdom

Dementia Care Foundation Bangladesh

Membership Type: Full
Disease Area: Dementia
Dhaka, Bangladesh

DementiaSA

Membership Type: Full
Disease Area: Support for families and carers; skills development for carers; networking with other organisations to share best practice in care of frail older persons
Cape Town, South Africa

Dopeca

Membership Type: Full
Disease Area: Congenial anomalies especially related with brain and spine
Lahore, Pakistan

Dreamsickle Kids Foundation

Membership Type: Full
Disease Area: Sickle Cell Disease
Las Vegas, USA

Društvo atopijski dermatitis (Atopic dermatitis association)

Membership Type: Full
Disease Area: Atopic dermatitis
Medvode,Slovenia

ecancer

Membership Type: Associate
Disease Area: Cancer
Bristol, United Kingdom

Egyptian Alzheimer Society

Membership Type: Full
Disease Area: Dementia especially Alzheimer Disease
Cairo, Egypt

Ensemble contre le Lymphome ECL

Membership Type: Full
Disease Area: Lymphoma
Marrakesh, Morocco

ESPERANTRA

Membership Type: Full
Disease Area: Cross Disease
Lima. Peru

Europa Uomo Switzerland

Membership Type: Full
Disease Area: Cross Disease
Ehrendingen, Switzerland

European Federation of Homeopathic Patients’ Associations

Membership Type: Full
Disease Area: Cross Disease
London, United Kingdom

European Thrombosis and Haemostasis Alliance (ETHA)

Membership Type: Associate
Disease Area: Thrombosis and hemostasis
Brussels, Belgium

Fabry International Network

Membership Type: Full
Disease Area: Farby Disease
Melsele,Belgium

Fadia Survive & Thrive Cancer Association

Membership Type: Full
Disease Area: Metastatic, Breast Cancer Prmary and metastatic, and other types of cancers and prevention to the public besides quality of life issues.
Salmiya, Kuwait

FAIM – Association For Autoimmune Diseases

Membership Type: Full
Disease Area: Autoimmune Diseases
Farsø, Denmark

Faraja Cancer Support Trust

Membership Type: Full
Disease Area: Oncology
Kenya

FEDERACIÓN ESPAÑOLA DE CÁNCER DE MAMA – FECMA

Membership Type: Full
Disease Area: Breast Cancer
Santander, Spain

FindMeCure Foundation

Membership Type: Associate
Disease Area: Cross Disease
Hertfordshire, United Kingdom

FNETH

Membership Type: Full
Disease Area: Liver Diseases
Madrid, Spain

Fondation A.R.CA.D, Aide et Recherche en CAncérologie Digestive

Membership Type: Full
Disease Area: Digestive Cancers
Paris, France

Fondazione Soleterre Onlus

Membership Type: Full
Disease Area: pediatric oncology
Milan, Italy

Footprints Foundation For Children in Zambia

Membership Type: Full
Disease Area: First aid, HIV Counselling and Care giver’s education
Lusaka, Zambia

For Grace: Women In Pain

Membership Type: Full
Disease Area: Women with chronic pain & people with cancer
California, USA

Foundation – Integration JP II

Membership Type: Full
Disease Area: Disabled people
Lodz, Poland

Fundación Aladina

Membership Type: Full
Disease Area: childhood cancer and blood diseases
Madrid, Spain

Fundación centro Colombiano de Eilepsia y Enfermedades Neurológicas

Membership Type: Full
Disease Area: Epilepsy
Cartagena, Colombia

Fundación de Alba

Membership Type: Associate
Disease Area: Cross Disease
Toluca, Mexico

Fundación de Apoyo a Enfermos con Trastornos Hipofisiarios (FAETH)

Membership Type: Full
Disease Area: Trastornos Hipofisirios
Cdla martha de Roldos, Ecuador

Fundacion Donde Quiero Estar

Membership Type: Full
Disease Area: Cancer
Buenos Aires, Argentina

Fundación Edificando Vidas, El Salvador

Membership Type: Full
Disease Area: Cancer
San Salvador, El Salvador

Fundacion Esclerosis Multiple Amor (FEMA)

Membership Type: Full
Disease Area: Enfermedades: Esclerosis Multiple (EM), Esclerosis Lateral Amiotrofica (ELA), Neuromielitis Óptica (NMO)
Cortés, Honduras

Fundación Movicancer

Membership Type: Full
Disease Area: Cancer
Casa, Nicaragua

Fundacion Pacientes de Cancer de Pulmon

Membership Type: Full
Disease Area: LUNG CANCER
Buenos Aires, Argentina

Fundacion Retorno Vital

Membership Type: Full
Disease Area: Cross Disease
Bogotá, Colombia

Fundacja Urszuli Jaworskiej

Membership Type: Full
Disease Area: multiple sclerosis, hepatitis C, leukemia
Warszawa, Poland

Fundapso

Membership Type: Full
Disease Area: Psoriasis, Psoriasis Arthritis and other skin diseases.
Cali -Valle, Colombia

FUVIDA

Membership Type: Full
Disease Area: Diabetes
Guayaquil,

Gastrointestinal Society

Membership Type: Full
Disease Area: Gastrointestinal and liver
Vancouver, Canada

Genetic Alliance Australia

Membership Type: Full
Disease Area: Lymphoma
Sydney, Australia

Ghana Relief Organization

Membership Type: Full
Disease Area: Child Health & Nutrition
Maryland, USA

GIPSO (Groupe d’aide à la recherche et à l’information sur le psoriasis)

Membership Type: Full
Disease Area: Psoriasis and psoriatic arthritis
Charleroi, Belgium

Global Allergy & Airways Patient Platform

Membership Type: Full
Disease Area: Allergy, asthma, eczema, COPD
Washington, USA

Global Chinese Breast Cancer Organizations Alliance

Membership Type: Full
Disease Area: Breast cancer
Kowloon, Hong Kong

Global Colon Cancer Association

Membership Type: Full
Disease Area: Colorectal Cancer
Philadelphia, USA

Global Heart Hub

Membership Type: Full
Disease Area: Cardiovascular Disease
Galway, Ireland

Global Liver Institute

Membership Type: Full
Disease Area: Liver diseases (in particoular: NASH, Liver Cancers, Paediatric and Rare Liver Diseases and Transplants
Washington DC, USA

Global Marwari Charitable Foundation.(GMCF-INDIA)INDIA

Membership Type: Full
Disease Area: Cancer,Diabitis
Maharashtra, India

Goodness and Mercy Missions

Membership Type: Full
Disease Area: Women & Child Empowerment
Boyo, Cameroon

Grupo Español de Pacientes con Cáncer

Membership Type: Full
Disease Area: Cancer
Madrid, Spain

GUYANA DIABETIC ASSOCIATION

Membership Type: Full
Disease Area: Diabetes
Georgetown

HAEMOPHILIA FOUNDATION OF NIGERIA

Membership Type: Full
Disease Area: BLEEDING DISORDERS (HAMEOPHILIA)
Kaduna-kaduna,Nigeria

Hands of Hope Community

Membership Type: Associate
Disease Area: Providing the Inclusive Education to children with autism and intellectual disabilities
Phnom Penh

Healing Venezuela

Membership Type: Associate
Disease Area: Cross Disease
Birmingham, United Kingdom

Health Care Consumers’ Association ACT

Membership Type: Full
Disease Area: Cross Disease
Canberra, Australia

Health Consumers Council (WA) Inc

Membership Type: Full
Disease Area: Cross Disease
Perth, Australia

Healthier & Happier Life Organization (HHLF)

Membership Type: Full
Disease Area: Cross Disease
Accra, Ghana

healthywomen

Membership Type: Full
Disease Area: Cross Disease
New York, USA

HELLENIC LEAGUE AGAINST RHEUMATISM

Membership Type: Full
Disease Area: Rheumatic and musculoskeletal diseases
Athens, Greece

HEMA-Association for support of patients and caregivers of Hematology

diseases

Membership Type: Full
Disease Area: Hematological diseses
Skopje, North Macedonia

HEPATITIS COALITION OF GHANA

Membership Type: Full
Disease Area: Viral Hepatitis
Accra, Ghana

HEPATITIS FOUNDATION OF GHANA

Membership Type: Full
Disease Area: Hepatitis
Accra, Ghana

House086

Membership Type: Full
Disease Area: Lymphoma
Beijing, China

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL)

Membership Type: Full
Disease Area: Hematooncological diseases
Zagreb, Croatia

Human Care Trust

Membership Type: Full
Disease Area:Human care
London, United Kingdom

Hyper-Cent Care Africa

Membership Type: Full
Disease Area:Patient support & Pallitive care
Patient support & Pallitive care

ICAN, International Cancer Advocacy Network

Membership Type: Full
Disease Area:Cancer
Tucson, USA

INDIAN PATIENTS SOCIETY FOR PRIMARY IMMUNODEFICIENCY-IPSPI

Membership Type: Full
Disease Area:Primary Immunodeficiency Diseases/Disorders
Odisha, India

Indira Cancer Trust

Membership Type: Full
Disease Area: Cancer
Colombo, Sri Lanka

Innovating Health International

Membership Type: Full
Disease Area: Cancer care, women’s health
Port au Prince, Haiti

Institute Atopika

Membership Type: Full
Disease Area: Atopic dermatitis (and comorbidities), allergy, asthma
Maribor, Slovenia

INSTITUTE FOR HARM REDUCTION ON HEALTH & ENVIRONMENT

Membership Type: Full
Disease Area: Drug use disorder, smoking
Male, Maldives

Inter-regional public organization for patients with hematological diseases «Most Miloserdiya» («Mercy Bridge»)

Membership Type: Full
Disease Area: Help for patients with hematological diseases
Moscow, Russia

Intergrated Community Approach to Development

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

International Alliance of Dermatology Patient Organizations (also known as GlobalSkin)

Membership Type: Full
Disease Area: Skin Diseases
Ontario, Canada

International Cancer Institute

Membership Type: Full
Disease Area: Cancer, Sickle Cell, Diabetes and Hypertension
Eldoret, Kenya

International Children’s Palliative Care Network (ICPCN)

Membership Type: Associate
Disease Area: Palliative Care
Bristol, United Kingdom

International Foundation for AiArthritis

Membership Type: Full
Disease Area: Autoimmune diseases and autoinflammatory diseases with arthritis as a major clinical component
St. Louis, USA

International Pain Foundation

Membership Type: Full
Disease Area: Cross Disease
Arizona, USA

International Painful Bladder Foundation

Membership Type: Full
Disease Area: Interstitial Cystitis, Bladder Pain Syndrome, Hunner Lesion, Hypersensitive Bladder
Naarden, Netherlands

International Pemphigus and Pemphigoid Foundation

Membership Type: Full
Disease Area: Pemphigus and Pemphigoid
Sacramento, USA

International Society for Quality in Health Care (ISQua)

Membership Type: Associate
Disease Area: Cross Disease
Dublin, Ireland

International Society on Thrombosis and Haemostasis (ISTH)

Membership Type: Associate
Disease Area: Thrombosis and hemostasis
North Carolina, USA

International Topical Steroid Awareness Network (ITSAN)

Membership Type: Full
Disease Area: Topical Steroid Withdrawal Syndrome
Georgia, USA

Irish Haemochromatosis Association

Membership Type: Full
Disease Area: Haemochromatosis or ‘iron overload’
Dublin, Ireland

Israel Cancer Association

Membership Type: Full
Disease Area: Cancer
Giv’atayim, Israel

KASH WELFARE TRUST

Membership Type: Full
Disease Area: Breast Cancer
Karachi, Pakistan

KENYA HOSPICES AND PALLIATIVE CARE ASSOCIATION

Membership Type: Associate
Disease Area: Hospices & Palliative Care
Nairobi, Kenya

Kenyan Network of CAncer Organizations

Membership Type: Full
Disease Area: Cancer
Nairobi, Kenya

kohgiluyeh and boyer ahmad Thalassemia Society, Iran

Membership Type: Full
Disease Area: Thalassemia and Sickle cell
Yasooj, Iran

Krabbe UK

Membership Type: Full
Disease Area: Krabbe Disease
Manchester, United Kingdom

Latin Health Leaders

Membership Type: Associate
Disease Area: Cross Diseasee
Florida, USA

Let’s Health Win Foundation

Membership Type: Full
Disease Area: Cross Disease
Warsaw, Poland

Lhak-Sam (BNP+)

Membership Type: Full
Disease Area: HIV, and other STIs, reproductive health and the mental health of the Key Affected Population
Thimphu, Bhutan

Life Empowerment Support Organisation

Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

Lifesaving Society Korea

Membership Type: Full
Disease Area: Cross Disease
Seoul, South Korea

LiveWell Initiative LWI

Membership Type: Full
Disease Area: Cross Disease
Victoria Island, Lagos.

Looms for Lupus

Membership Type: Full
Disease Area: Autoimmune & Inflammatory & Musculoskeletal
Los Angeles, USA

Lupus and Allied Diseases Association, Inc.

Membership Type: Full
Disease Area: Lupus and allied diseases, related autoimmune conditions and co-morbidities
New York, USA

Lutheran World Federation ?Augusta Victoria Hospital

Membership Type: Associate
Disease Area: advanced oncology services and nephrology
Jerusalem, Israel

LYLE patient organization for Lymphoma, Leukemia and MDS

Membership Type: Full
Disease Area: Lymphoma, leukemia and MDS
Naestved, Demark

Lymfklierkanker Vereniging Vlaanderen vzw

Membership Type: Full
Disease Area: Lymphoma
Brussels, Belgium

Lymphoma Action

Membership Type: Full
Disease Area: Lymphoma
Aylesbury, United Kingdom

Lymphoma Patient Association LYPA

Membership Type: Full
Disease Area: Lymphomas and CLL
Nis, Serbia

Malian observatory for quality and safety of care (OMAQUASS)

Membership Type: Associate
Disease Area: Cross Disease
Bamako, Mali

Malta Health Network

Membership Type: Full
Disease Area: Cross Disease
Qormi, Malta

Manage Health Foundation

Membership Type: Full
Disease Area: Oncology, Haematology, Diabetology and Nephrology
Ahmedabad, India

Manica Youth Assembly (MAYA)

Membership Type: Associate
Disease Area: Environment Protection
Mutare, Zimbabwe

Mauritius Council of Social Service (MACOSS) 

Membership Type: Full
Disease Area: Cross Disease
Port Louis, Mauritius

Mental Health Society of Ghana (MEHSOG)

Membership Type: Full
Disease Area: Mental health and epilepsy
Accra, Ghana

Mentally Aware Nigeria Initiative

Membership Type: Full
Disease Area: Mental Health
Lagos, Nigeria

Mexican Association Against Psoriasis

Membership Type: Full
Disease Area: Psoriasis and other skin diseases
Mexico City, Mexico

Michael and Francisca Foundation

Membership Type: Full
Disease Area: Stroke and NCDs
Lagos, Nigeria

Mothers Against Medical Error

Membership Type: Full
Disease Area: Medical Errors
Georgia,USA

Naijaid

Membership Type: Full
Disease Area: Cross Disease
London, United Kingdom

NASPEC- Nucleo Assistêncial para pessoas com câncer

Membership Type: Associate
Disease Area: palliative care of all cancro and Advocacy
Salvador, Brazil

National AssNational Association for help and Support of Persons with Multiple Sclerosis, NATIONAL ASSOCIATION FOR MS

Membership Type: Full
Disease Area: Multipe sclerosis
Skopje, North Macedonia

National Cancer Control Foundation

Membership Type: Full
Disease Area: Cancer
Sana’a, Yemen

National Community of women, girls and men living with HIV in Ugada (NACWOLA)

Membership Type: Associate
Disease Area: HIV/AIDS
Kampala, Uganda

National Diabetes Organization – DiaLeb

Membership Type: Full
Disease Area: Diabetes
Beirut, Lebnon

National organization Allergy and me

Membership Type: Full
Disease Area: Allergy, asthma, atopic eczema
Novo Beograd,Serbia

National Rheumatoid Arthritis Society

Membership Type: Full
Disease Area: Rheumatoid Arthritis and Juvenile Idiopathic Arthritis
London, United Kingdom

National Thalassemia Welfare Society

Membership Type: Full
Disease Area: Thalassemia and Sickle Cell disease
New Delhi, India

NGO Futura

Membership Type: Associate
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Podgorica Montenegro

Northern Healthy Connections Society

Membership Type: Full
Disease Area: The organization works specifically with persons who use drugs and are at risk of transmission of Sexually Transmitted and Blood Bourne Infections (STBBIs)
Nova Scotia, Canada

NVO RAM- Association for helping people with rheumatic diseases

Membership Type: Full
Disease Area: Rheumatic diseases
Budva, Montenegro

Osteoprosis Australia

Membership Type: Associate
Disease Area: Osteoporosis & bone health
Canberra, Australia

Painaustralia

Membership Type: Full
Disease Area: Chronic pain
Canberra, Australia

Palestinian Osteoporosis Prevention Society/POPS

Membership Type: Full
Disease Area: Osteoporosis
Beit Jala, Palestine

Pan African Positive Women’s Coalition-Zimbabwe

Membership Type: Full
Disease Area: HIV and AIDS, COVID-19 and SRHR
Kadoma, Zimbabwe

Pancreatic Cancer Canada

Membership Type: Full
Disease Area: Pancreatic cancer
Toronto, Canada

Papua New Guinea National Cancer Centre

Membership Type: Associate
Disease Area: Cancer
Finschhafen, Papua New Guinea

Patient Safety Movement Foundation

Membership Type: Full
Disease Area:Cross Disease
Los Angeles, USA

Patients Safety Foundation

Membership Type: Full
Disease Area: Cross Disease
Lodz, Poland

Penang of Multiple Sclerosis Support Group Association

Membership Type: Full
Disease Area: Multipe sclerosis
Penang Island,Malaysia

Peoples Development Community(PDC)

Membership Type: Associate
Disease Area: Cross Disease
Dhaka, Bangladesh

pharmacists nineveh medical organization

Membership Type: Full
Disease Area: Cross Disease
Mosul, Iraq

PinkDrive NPC

Membership Type: Full
Disease Area: Cancer, HIV, TB, Diabetes
Johannesburg, South Africa

Polish Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Warsaw, Poland

Polskie Towarzystwo Chorób Atopowych

Membership Type: Full
Disease Area: Atopic diseases (atopic eczema, asthma, hives, allergic rhinitis, allergic conjunctivitis) and allergies
Warsaw, Poland

Positive Health Media Initiative

Membership Type: Full
Disease Area: Cross Disease
Benue State, Nigeria

Positive Men’s Union (POMU)

Membership Type: Full
Disease Area: HIV/AIDS and Tuberclosis
Kampala, Uganda

Preventive Cardiovascular Nurses Association (PCNA)

Membership Type: Associate
Disease Area: Cardiovascular Disease and its comorbidities
Wisconsin, USA

Professional Relief Organisation

Membership Type: Full
Disease Area: Cross Disease
Essex, United Kingdom

Psoriasis Asia Pacific

Membership Type: Full
Disease Area: NCDs
Mandaluyong City, Philippines

Psoriasis awareness club Bangladesh

Membership Type: Full
Disease Area: Psoriasis and psoriatic arthritis
Dhaka, Bangladesh

Psoriasis Philippines

Membership Type: Full
Disease Area: Psoriasis and Psoriatic Arthritis
Makati City, Philippines

Psoriatic Patient Support Association “KALYPSO"

Membership Type: Full
Disease Area: Psoriasis and Psoriatic Arthritis
Athens, Greece

Public Foundation “Ergene"

Membership Type: Full
Disease Area: breast cancer and cervical cancer
Bishkek, Kyrgyzstan

Pulmonary Hypetension Latin Society / Sociedad Latina de Hipertension Pulmonar

Membership Type: Full
Disease Area: Pulmonary Hypertension
Miami, USA

Rare Disease Foundation

Membership Type: Full
Disease Area: Rare Disease
Vancouver, Canada

Rare Disease Ghana Initiative

Membership Type: Full
Disease Area: Undiagnosed, Genetic and Rare Diseases
Accra, Ghana

Rare Diseases Foundation of Iran(RADOIR)

Membership Type: Full
Disease Area: Rare Diseases, Rare Genetic Disorders and Undiagnosed Diseases (UDN)
Tehran, Iran

Rare Disorders Kenya

Membership Type: Associate
Disease Area: Cross Disease,
Nairobi, Kenya

Rare Disorders NZ

Membership Type: Full
Disease Area: All Rare Disorders
Wellington, Newzealand

Reach to Recovery International, Inc.

Membership Type: Full
Disease Area: Breast Cancer
Baltimore, USA

RED NOSES Clowndoctors International

Membership Type: Associate
Disease Area: We are a healthcare clowning organisation, anything related to mental health & psychosocial support, as well as humour and culture, would be of interest.
Vienna, AUSTRIA

Red Ribbon Istanbul

Membership Type: Full
Disease Area: HIV/AIDS
Istanbul, Turkey

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Membership Type: Full
Disease Area: Complex Regional Pain Syndrome (CRPS)
Milford, USA

RheumaCura

Membership Type: Full
Disease Area: Specific Disease Area, rheumatic and musculoskeletal disorders and disease
Bern, Switzerland

Royal Health Awareness Society

Membership Type: Associate
Disease Area: Cross Disease
Amman, Jordan

Rwanda NCD Alliance

Membership Type: Full
Disease Area: NCD
Kigali – Kinamba, KN8 Av27

Save Foundation

Membership Type: Full
Disease Area: Mother & child health care
Lahore, Pakistan

SENOSALUD

Membership Type: Full
Disease Area: Cancer de Mama
Caracas, Venezuela

SHWE YAUNG HNIN SI CANCER FOUNDATION MYANMAR

Membership Type: Full
Disease Area: Cancer
Yangon, Myanmar

Situka Alliance Initiative, Uganda – SAI

Membership Type: Full
Disease Area: We engage men to build resilient and healthy communities for themselves, spouses and children including the rights to seek medical services.
Kampala, Uganda

Skin and allergic desisases

Membership Type: Full
Disease Area: Skin and allergic
Moscow, Russia

Skin-Hub – Koalicja na rzecz dermatoz i alergii

Membership Type: Full
Disease Area: All dermatoses and allergies
Warsaw, Poland

Slovenian Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Ljubljana, Slovenia

Sociedade Portuguesa de Esclerose Multipla (SPEM)

Membership Type: Full
Disease Area: Multiple Sclerosis
Lisboa, Portugal

South African Depression and Anxiety Group. (SADAG)

Membership Type: Full
Disease Area: mental health
South Africa

Stroke Association Supportnetwork-Ghana (SASNET-GHANA)

Membership Type: Full
Disease Area: NCDs and Pademics
Accra,Ghana

STROKE CARE INTERNATIONAL

Membership Type: Full
Disease Area: STROKE
Lagos, Nigeria

Stroke Support India ( an effor of Nav Anubhuti Welfare Society)

Membership Type: Full
Disease Area: STROKE
Greater Noida, India

Stupid Cancer, Inc.

Membership Type: Full
Disease Area: cancer (specifically adolescent and young adult cancer)
New York, USA

Syria algad relief foundation

Membership Type: Full
Disease Area: Cross Disease
Giza, Egypt

Tanzania Breast Cancer Foundation

Membership Type: Full
Disease Area: Breast Cancer
Dar es Salaam, Tanzania

Thalassaemia and Sickle Cell Australia

Membership Type: Full
Disease Area: Haemoglobin Disorders
Victoria, Australia

THALASSAEMIA FEDERATION OF PAKISTAN

Membership Type:
Disease Area: Beta Thalassaemia
LAHORE, PAKISTAN

Thalassaemia Society of Pakistan

Membership Type: Full
Disease Area:  Thalassaemia
LAHORE, PAKISTAN

The Albino Trust of Zimbabwe

Membership Type: Full
Disease Area: Albinism and other forms of disabilities
Harare, Zimbabwe

The Asthma Society of Ireland

Membership Type: Full
Disease Area: Asthma
Dublin, Ireland

The Bricon Foundation

Membership Type: Full
Disease Area: Cancer
Lagos, Nigeria

The BVI Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Tortola, British Virgin Islands

The Cholangiocarcinoma Foundation

Membership Type: Full
Disease Area: Cholangiocarcinoma
Kabuga, Rwanda

The Dominica Cancer Society Inc

Membership Type: Full
Disease Area: Cancer
Roseau, Commonwealth of Dominica

The Dorcas Cancer Foundation

Membership Type: Full
Disease Area: Childhood Cancer
Lagos, Nigeria

The Ehlers-Danlos Society

Membership Type: Full
Disease Area: Ehlers-Danlos syndrome
New York, USA

The Estonian Inflammatory Bowel Disease Association

Membership Type: Full
Disease Area: IBD
Tallinn, Estonia

The Mended Hearts, Inc.

Membership Type: Full
Disease Area: Cardiovascular Disease
Georgia, USA

The National Back Pain Association

Membership Type: Full
Disease Area: Back pain
London, United Kingdom

The National Organisation for People Living with Hepatitis B

Membership Type: Full
Disease Area: Viral Hepatitis
Kampala, Uganda

The Patient Benevolent Society

Membership Type: Full
Disease Area: Cross Disease
Lahore, Pakistan

The Swallows Head & Neck Cancer Support Charity

Membership Type: Full
Disease Area: Head & Neck Cancer
Manchester, United Kingdom

Together against cancer Fund

Membership Type: Associate
Disease Area: oncology
Moscow, Russia

Tulasi Maya Memorial Cancer Relief Foundation

Membership Type: Full
Disease Area: Cervical Cancer, Breast Cancer, Cancer Advocacy and Tobacco control
Kathmandu, Nepal

Tunisian Association of Multiple Sclerosis Patients

Membership Type: Associate
Disease Area: multiple sclerosis
Tunis, Tunisia

Uganda Allinace of Patients" Organisations

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Uganda Women’s Cancer Support Organisation

Membership Type: Full
Disease Area: cancer
Bukoto, Kampala

UKRAINIAN DIABETIC FEDERATION

Membership Type: Full
Disease Area: DIABETES
Kyiv, Ukrain

Unidos Contra el Cáncer (Tour Rosa Assication)

Membership Type: Full
Disease Area: Cancer
San José, Costa Rica

United Kingdom Thalassaemia Society

Membership Type: Full
Disease Area: Thalassaemia
London, United Kingdom

Uzbekistan CML patients league

Membership Type: Full
Disease Area: Chronic Myeloid Leukemia, Acutel Lymphoid Leukemia, GIST
Tashkent, Uzbekistan

Venezuelan Breast Cancer Research and Education Foundation

Membership Type: Full
Disease Area: Breast Cancer
Caracas, Venezuela

Vlaams Hepatitis Contactpunt

Membership Type: Full
Disease Area: liver diseases (hepatitis and NASH)
Brussels, Belgium

Welfare Hand Organisation

Membership Type: Full
Disease Area:Cross Disease
Peshawar, Pakistan

Wiskott-Aldrich Foundation

Membership Type: Full
Disease Area: Wiskott-Aldrich Syndrome
Atlanta, USA

Women and Child Support Organization (WOCSO)

Membership Type: Full
Disease Area: Cross Disease
Mogadishu, Somalia

Women for Cancer, Early Detection and Treatment

Membership Type: Full
Disease Area: Cervical Cancer
Eldoret, Kenya

WOMEN IN COMMUNITES ZIMBABWE

Membership Type: Full
Disease Area: HIV, TB and Malaria and Cervical cancer
Gweru, Zimbabwe

Women in Hepatitis Africa WIHA

Membership Type: Full
Disease Area: Hepatitis
Lagos, Nigeria

Women’s Coalition Against Cancer – WOCACA

Membership Type: Full
Disease Area: Reproductive Cancers and other Non-Communicable Diseases
Lilongwe, Malawi

World Alliance of Pituitary Organizations ( ‘WAPO’)

Membership Type: Full
Disease Area: All related diseases (Thyroid, Obesity, Diabetes 2, Vision problems, etc) and side-effects which are often involved in a pituitary disorder.
Uden, Netherlands

YASKA Brunei

Membership Type: Full
Disease Area: Chilhood Cancer
PulauBerambang, Brunei

Yayasan Peduli Psoriasis Indonesia (psorIndo)

Membership Type: Full
Disease Area: All diseases insider of the body
Jakarta, Indonesia

Ye Ethiopia cancer association

Membership Type: Full
Disease Area: Cancer
Addis Ababa, Ethiopia

Zambian Cancer Society

Membership Type: Full
Disease Area: Cancer
Lusaka, Zambia

Zimbabwe People Living with HIV Coordinating Board

Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

National Alliance for Rare Diseases Support – Malta

Membership Type: Full
Disease Area: Cross Disease
Valletta, Malta

Lake Health and Wellbeing

Membership Type: Full
Disease Area: Cross Disease
Bird Rock, Saint Kitts and Nevis

Russian Association on Osteoporosis

Membership Type: Associate
Disease Area: Osteoporosis
Moscow, Russia

Charter of “Fighting Leukemia" Public Union

Membership Type: Full
Disease Area: Leukemia
Baku, Azerbaijan

SANO

Membership Type: Full
Disease Area: Malignant diseases in children
Skopje, North Macedonia

Mathiwos Wondu-YeEthiopia Cancer Society

Membership Type: Full
Disease Area: NCD & Cancer
Addis Ababa, Ethiopia

ASHIC, Foundation for Childhood Cancer

Membership Type: Full
Disease Area: Childhood Cancer
Dhaka, Bangladesh

Fertility Europe

Membership Type: Full
Disease Area: Infertility
Brussels, Belgium

FINCOPP-FEDERAZIONE ITALIANA INCONTINENTI E DISFINZIONI PAVIMENTO PELVICO

Membership Type: Full
Disease Area: Cross Disease
Bari, Italy

ASSOCIAZIONE ITALIANA STOMIZZATI A.I.STOM. O.D.V.

Membership Type: Full
Disease Area: STOMIA
Bari, Italy

Campaigning for Cancer

Membership Type: Full
Disease Area: Cancer
Johannesburg, South Africa

Breast Care International (BCI)

Membership Type: Full
Disease Area: Breast Cancer
Kumasi, Ghana

SEN Slovensko/Cesko

Membership Type: Associate
Disease Area: Religious and Spiritual Problem as defined in the psychiatric manual DSM V
Bánovce nad Bebravou, Slovakia

Pain Support Organisation

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Trinity Healthcare Foundation

Membership Type: Full
Disease Area: Cross Disease
Lagos, Nigeria

Dup15q Alliance

Membership Type: Full
Disease Area: Dup15q syndrome
North Carolina, USA

Cancer Association of Namibia (WO30)

Membership Type: Full
Disease Area: Cancer
Windhoek, Namibia

Crohn en colitis ulcerosa vereniging vzw

Membership Type: Full
Disease Area: IBD
Brussels, Belgium

Pun Yaung Hnin Si (Pink Rose) Breast Cancer Patients Support Group

Membership Type: Full
Disease Area: Breast Cancer
Yangon, Myanmar

ABRALE – Brazilian Lymphoma and Leukemia Association

Membership Type: Full
Disease Area: Oncology
São Paulo, Brazil

Oncoguia

Membership Type: Full
Disease Area: Cancer
São Paulo, Brazil

SAID NGO

Membership Type: Full
Disease Area: Colon Cancer Awareness
Beirut, Lebanon

Lugei Foundation Uganda

Membership Type: Full
Disease Area: Cross Disease
kampala Uganda

PT.AVC – União de Sobreviventes, Familiares e Amigos

Membership Type: Full
Disease Area: Stroke
Viseu, Portugal

Australia Alopecia Areata Foundation Inc

Membership Type: Associate
Disease Area: Alopecia Areata – All forms
Melbourne, Australia

Por Una Vida Libre de ACV

Membership Type: Full
Disease Area: Cross Disease
Argentina

MULTIPLE SCLEROSIS ASSOCIATION OF LANKA

Membership Type: Full
Disease Area: Multiple Sclerosis
Colombo, Sri Lanka

Psoriatic and Atopic Eczema Association Czech Rep.

Membership Type: Full
Disease Area: Cross Disease
Prague, Czech Republic

Eczema Outreach Support

Membership Type: Full
Disease Area: Atopic Eczema
Edinburgh, United Kingdom

Alliance Algérienne contre les Maladies rares

Membership Type: Full
Disease Area: Rare Disease
Baraki, Algeria