Members WPA - World Patients Alliance

Membership Type: Full
Disease Area: Support for families and carers; skills development for carers; networking with other organisations to share best practice in care of frail older persons
Cape Town, South Africa

Dopeca

Membership Type: Full
Disease Area: Congenial anomalies especially related with brain and spine
Lahore, Pakistan

Dreamsickle Kids Foundation

Membership Type: Full
Disease Area: Sickle Cell Disease
Las Vegas, USA

Društvo atopijski dermatitis (Atopic dermatitis association)

Membership Type: Full
Disease Area: Atopic dermatitis
Medvode,Slovenia

ecancer

Membership Type: Associate
Disease Area: Cancer
Bristol, United Kingdom

Egyptian Alzheimer Society

Membership Type: Full
Disease Area: Dementia especially Alzheimer Disease
Cairo, Egypt

Ensemble contre le Lymphome ECL

Membership Type: Full
Disease Area: Lymphoma
Marrakesh, Morocco

ESPERANTRA

Membership Type: Full
Disease Area: Cross Disease
Lima. Peru

Europa Uomo Switzerland

Membership Type: Full
Disease Area: Cross Disease
Ehrendingen, Switzerland

European Federation of Homeopathic Patients’ Associations

Membership Type: Full
Disease Area: Cross Disease
London, United Kingdom

European Thrombosis and Haemostasis Alliance (ETHA)

Membership Type: Associate
Disease Area: Thrombosis and hemostasis
Brussels, Belgium

Fabry International Network

Membership Type: Full
Disease Area: Farby Disease
Melsele,Belgium

Fadia Survive & Thrive Cancer Association

Membership Type: Full
Disease Area: Metastatic, Breast Cancer Prmary and metastatic, and other types of cancers and prevention to the public besides quality of life issues.
Salmiya, Kuwait

FAIM – Association For Autoimmune Diseases

Membership Type: Full
Disease Area: Autoimmune Diseases
Farsø, Denmark

Faraja Cancer Support Trust

Membership Type: Full
Disease Area: Oncology
Kenya

FEDERACIÓN ESPAÑOLA DE CÁNCER DE MAMA – FECMA

Membership Type: Full
Disease Area: Breast Cancer
Santander, Spain

FindMeCure Foundation

Membership Type: Associate
Disease Area: Cross Disease
Hertfordshire, United Kingdom

FNETH

Membership Type: Full
Disease Area: Liver Diseases
Madrid, Spain

Fondation A.R.CA.D, Aide et Recherche en CAncérologie Digestive

Membership Type: Full
Disease Area: Digestive Cancers
Paris, France

Fondazione Soleterre Onlus

Membership Type: Full
Disease Area: pediatric oncology
Milan, Italy

Footprints Foundation For Children in Zambia

Membership Type: Full
Disease Area: First aid, HIV Counselling and Care giver’s education
Lusaka, Zambia

For Grace: Women In Pain

Membership Type: Full
Disease Area: Women with chronic pain & people with cancer
California, USA

Foundation – Integration JP II

Membership Type: Full
Disease Area: Disabled people
Lodz, Poland

Fundación Aladina

Membership Type: Full
Disease Area: childhood cancer and blood diseases
Madrid, Spain

Fundación centro Colombiano de Eilepsia y Enfermedades Neurológicas

Membership Type: Full
Disease Area: Epilepsy
Cartagena, Colombia

Fundación de Alba

Membership Type: Associate
Disease Area: Cross Disease
Toluca, Mexico

Fundación de Apoyo a Enfermos con Trastornos Hipofisiarios (FAETH)

Membership Type: Full
Disease Area: Trastornos Hipofisirios
Cdla martha de Roldos, Ecuador

Fundacion Donde Quiero Estar

Membership Type: Full
Disease Area: Cancer
Buenos Aires, Argentina

Fundación Edificando Vidas, El Salvador

Membership Type: Full
Disease Area: Cancer
San Salvador, El Salvador

Fundacion Esclerosis Multiple Amor (FEMA)

Membership Type: Full
Disease Area: Enfermedades: Esclerosis Multiple (EM), Esclerosis Lateral Amiotrofica (ELA), Neuromielitis Óptica (NMO)
Cortés, Honduras

Fundación Movicancer

Membership Type: Full
Disease Area: Cancer
Casa, Nicaragua

Fundacion Pacientes de Cancer de Pulmon

Membership Type: Full
Disease Area: LUNG CANCER
Buenos Aires, Argentina

Fundacion Retorno Vital

Membership Type: Full
Disease Area: Cross Disease
Bogotá, Colombia

Fundacja Urszuli Jaworskiej

Membership Type: Full
Disease Area: multiple sclerosis, hepatitis C, leukemia
Warszawa, Poland

Fundapso

Membership Type: Full
Disease Area: Psoriasis, Psoriasis Arthritis and other skin diseases.
Cali -Valle, Colombia

FUVIDA

Membership Type: Full
Disease Area: Diabetes
Guayaquil,

Gastrointestinal Society

Membership Type: Full
Disease Area: Gastrointestinal and liver
Vancouver, Canada

Genetic Alliance Australia

Membership Type: Full
Disease Area: Lymphoma
Sydney, Australia

Ghana Relief Organization

Membership Type: Full
Disease Area: Child Health & Nutrition
Maryland, USA

GIPSO (Groupe d’aide à la recherche et à l’information sur le psoriasis)

Membership Type: Full
Disease Area: Psoriasis and psoriatic arthritis
Charleroi, Belgium

Global Allergy & Airways Patient Platform

Membership Type: Full
Disease Area: Allergy, asthma, eczema, COPD
Washington, USA

Global Chinese Breast Cancer Organizations Alliance

Membership Type: Full
Disease Area: Breast cancer
Kowloon, Hong Kong

Global Colon Cancer Association

Membership Type: Full
Disease Area: Colorectal Cancer
Philadelphia, USA

Global Heart Hub

Membership Type: Full
Disease Area: Cardiovascular Disease
Galway, Ireland

Global Liver Institute

Membership Type: Full
Disease Area: Liver diseases (in particoular: NASH, Liver Cancers, Paediatric and Rare Liver Diseases and Transplants
Washington DC, USA

Global Marwari Charitable Foundation.(GMCF-INDIA)INDIA

Membership Type: Full
Disease Area: Cancer,Diabitis
Maharashtra, India

Goodness and Mercy Missions

Membership Type: Full
Disease Area: Women & Child Empowerment
Boyo, Cameroon

Grupo Español de Pacientes con Cáncer

Membership Type: Full
Disease Area: Cancer
Madrid, Spain

GUYANA DIABETIC ASSOCIATION

Membership Type: Full
Disease Area: Diabetes
Georgetown

HAEMOPHILIA FOUNDATION OF NIGERIA

Membership Type: Full
Disease Area: BLEEDING DISORDERS (HAMEOPHILIA)
Kaduna-kaduna,Nigeria

Hands of Hope Community

Membership Type: Associate
Disease Area: Providing the Inclusive Education to children with autism and intellectual disabilities
Phnom Penh

Healing Venezuela

Membership Type: Associate
Disease Area: Cross Disease
Birmingham, United Kingdom

Health Care Consumers’ Association ACT

Membership Type: Full
Disease Area: Cross Disease
Canberra, Australia

Health Consumers Council (WA) Inc

Membership Type: Full
Disease Area: Cross Disease
Perth, Australia

Healthier & Happier Life Organization (HHLF)

Membership Type: Full
Disease Area: Cross Disease
Accra, Ghana

healthywomen

Membership Type: Full
Disease Area: Cross Disease
New York, USA

HELLENIC LEAGUE AGAINST RHEUMATISM

Membership Type: Full
Disease Area: Rheumatic and musculoskeletal diseases
Athens, Greece

HEMA-Association for support of patients and caregivers of Hematology

diseases

Membership Type: Full
Disease Area: Hematological diseses
Skopje, North Macedonia

HEPATITIS COALITION OF GHANA

Membership Type: Full
Disease Area: Viral Hepatitis
Accra, Ghana

HEPATITIS FOUNDATION OF GHANA

Membership Type: Full
Disease Area: Hepatitis
Accra, Ghana

House086

Membership Type: Full
Disease Area: Lymphoma
Beijing, China

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL)

Membership Type: Full
Disease Area: Hematooncological diseases
Zagreb, Croatia

Human Care Trust

Membership Type: Full
Disease Area:Human care
London, United Kingdom

Hyper-Cent Care Africa

Membership Type: Full
Disease Area:Patient support & Pallitive care
Patient support & Pallitive care

ICAN, International Cancer Advocacy Network

Membership Type: Full
Disease Area:Cancer
Tucson, USA

INDIAN PATIENTS SOCIETY FOR PRIMARY IMMUNODEFICIENCY-IPSPI

Membership Type: Full
Disease Area:Primary Immunodeficiency Diseases/Disorders
Odisha, India

Indira Cancer Trust

Membership Type: Full
Disease Area: Cancer
Colombo, Sri Lanka

Innovating Health International

Membership Type: Full
Disease Area: Cancer care, women’s health
Port au Prince, Haiti

Institute Atopika

Membership Type: Full
Disease Area: Atopic dermatitis (and comorbidities), allergy, asthma
Maribor, Slovenia

INSTITUTE FOR HARM REDUCTION ON HEALTH & ENVIRONMENT

Membership Type: Full
Disease Area: Drug use disorder, smoking
Male, Maldives

Inter-regional public organization for patients with hematological diseases «Most Miloserdiya» («Mercy Bridge»)

Membership Type: Full
Disease Area: Help for patients with hematological diseases
Moscow, Russia

Intergrated Community Approach to Development

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

International Alliance of Dermatology Patient Organizations (also known as GlobalSkin)

Membership Type: Full
Disease Area: Skin Diseases
Ontario, Canada

International Cancer Institute

Membership Type: Full
Disease Area: Cancer, Sickle Cell, Diabetes and Hypertension
Eldoret, Kenya

International Children’s Palliative Care Network (ICPCN)

Membership Type: Associate
Disease Area: Palliative Care
Bristol, United Kingdom

International Foundation for AiArthritis

Membership Type: Full
Disease Area: Autoimmune diseases and autoinflammatory diseases with arthritis as a major clinical component
St. Louis, USA

International Pain Foundation

Membership Type: Full
Disease Area: Cross Disease
Arizona, USA

International Painful Bladder Foundation

Membership Type: Full
Disease Area: Interstitial Cystitis, Bladder Pain Syndrome, Hunner Lesion, Hypersensitive Bladder
Naarden, Netherlands

International Pemphigus and Pemphigoid Foundation

Membership Type: Full
Disease Area: Pemphigus and Pemphigoid
Sacramento, USA

International Society for Quality in Health Care (ISQua)

Membership Type: Associate
Disease Area: Cross Disease
Dublin, Ireland

International Society on Thrombosis and Haemostasis (ISTH)

Membership Type: Associate
Disease Area: Thrombosis and hemostasis
North Carolina, USA

International Topical Steroid Awareness Network (ITSAN)

Membership Type: Full
Disease Area: Topical Steroid Withdrawal Syndrome
Georgia, USA

Irish Haemochromatosis Association

Membership Type: Full
Disease Area: Haemochromatosis or ‘iron overload’
Dublin, Ireland

Israel Cancer Association

Membership Type: Full
Disease Area: Cancer
Giv’atayim, Israel

KASH WELFARE TRUST

Membership Type: Full
Disease Area: Breast Cancer
Karachi, Pakistan

KENYA HOSPICES AND PALLIATIVE CARE ASSOCIATION

Membership Type: Associate
Disease Area: Hospices & Palliative Care
Nairobi, Kenya

Kenyan Network of CAncer Organizations

Membership Type: Full
Disease Area: Cancer
Nairobi, Kenya

kohgiluyeh and boyer ahmad Thalassemia Society, Iran

Membership Type: Full
Disease Area: Thalassemia and Sickle cell
Yasooj, Iran

Krabbe UK

Membership Type: Full
Disease Area: Krabbe Disease
Manchester, United Kingdom

Latin Health Leaders

Membership Type: Associate
Disease Area: Cross Diseasee
Florida, USA

Let’s Health Win Foundation

Membership Type: Full
Disease Area: Cross Disease
Warsaw, Poland

Lhak-Sam (BNP+)

Membership Type: Full
Disease Area: HIV, and other STIs, reproductive health and the mental health of the Key Affected Population
Thimphu, Bhutan

Life Empowerment Support Organisation

Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

Lifesaving Society Korea

Membership Type: Associate
Disease Area: Cross Disease
Seoul, South Korea

LiveWell Initiative LWI

Membership Type: Full
Disease Area: Cross Disease
Victoria Island, Lagos.

Looms for Lupus

Membership Type: Full
Disease Area: Autoimmune & Inflammatory & Musculoskeletal
Los Angeles, USA

Lupus and Allied Diseases Association, Inc.

Membership Type: Full
Disease Area: Lupus and allied diseases, related autoimmune conditions and co-morbidities
New York, USA

Lutheran World Federation ?Augusta Victoria Hospital

Membership Type: Associate
Disease Area: advanced oncology services and nephrology
Jerusalem, Israel

LYLE patient organization for Lymphoma, Leukemia and MDS

Membership Type: Full
Disease Area: Lymphoma, leukemia and MDS
Naestved, Demark

Lymfklierkanker Vereniging Vlaanderen vzw

Membership Type: Full
Disease Area: Lymphoma
Brussels, Belgium

Lymphoma Action

Membership Type: Full
Disease Area: Lymphoma
Aylesbury, United Kingdom

Lymphoma Patient Association LYPA

Membership Type: Full
Disease Area: Lymphomas and CLL
Nis, Serbia

Malian observatory for quality and safety of care (OMAQUASS)

Membership Type: Associate
Disease Area: Cross Disease
Bamako, Mali

Malta Health Network

Membership Type: Full
Disease Area: Cross Disease
Qormi, Malta

Manage Health Foundation

Membership Type: Full
Disease Area: Oncology, Haematology, Diabetology and Nephrology
Ahmedabad, India

Manica Youth Assembly (MAYA)

Membership Type: Associate
Disease Area: Environment Protection
Mutare, Zimbabwe

Mauritius Council of Social Service (MACOSS)

Membership Type: Associate
Disease Area: Cross Disease
Port Louis, Mauritius

Mental Health Society of Ghana (MEHSOG)

Membership Type: Full
Disease Area: Mental health and epilepsy
Accra, Ghana

Mentally Aware Nigeria Initiative

Membership Type: Full
Disease Area: Mental Health
Lagos, Nigeria

Mexican Association Against Psoriasis

Membership Type: Full
Disease Area: Psoriasis and other skin diseases
Mexico City, Mexico

Michael and Francisca Foundation

Membership Type: Full
Disease Area: Stroke and NCDs
Lagos, Nigeria

Mothers Against Medical Error

Membership Type: Full
Disease Area: Medical Errors
Georgia,USA

Naijaid

Membership Type: Full
Disease Area: Cross Disease
London, United Kingdom

NASPEC- Nucleo Assistêncial para pessoas com câncer

Membership Type: Associate
Disease Area: palliative care of all cancro and Advocacy
Salvador, Brazil

National AssNational Association for help and Support of Persons with Multiple Sclerosis, NATIONAL ASSOCIATION FOR MS

Membership Type: Full
Disease Area: Multipe sclerosis
Skopje, North Macedonia

National Cancer Control Foundation

Membership Type: Full
Disease Area: Cancer
Sana’a, Yemen

National Community of women, girls and men living with HIV in Ugada (NACWOLA)

Membership Type: Associate
Disease Area: HIV/AIDS
Kampala, Uganda

National Diabetes Organization – DiaLeb

Membership Type: Full
Disease Area: Diabetes
Beirut, Lebnon

National organization Allergy and me

Membership Type: Full
Disease Area: Allergy, asthma, atopic eczema
Novo Beograd,Serbia

National Rheumatoid Arthritis Society

Membership Type: Full
Disease Area: Rheumatoid Arthritis and Juvenile Idiopathic Arthritis
London, United Kingdom

National Thalassemia Welfare Society

Membership Type: Full
Disease Area: Thalassemia and Sickle Cell disease
New Delhi, India

NGO Futura

Membership Type: Associate
Disease Area: ALZHEIMER’S DISEASE & RELATED DEMENTIAS
Podgorica Montenegro

Northern Healthy Connections Society

Membership Type: Full
Disease Area: The organization works specifically with persons who use drugs and are at risk of transmission of Sexually Transmitted and Blood Bourne Infections (STBBIs)
Nova Scotia, Canada

NVO RAM- Association for helping people with rheumatic diseases

Membership Type: Full
Disease Area: Rheumatic diseases
Budva, Montenegro

Osteoprosis Australia

Membership Type: Associate
Disease Area: Osteoporosis & bone health
Canberra, Australia

Painaustralia

Membership Type: Full
Disease Area: Chronic pain
Canberra, Australia

Palestinian Osteoporosis Prevention Society/POPS

Membership Type: Full
Disease Area: Osteoporosis
Beit Jala, Palestine

Pan African Positive Women’s Coalition-Zimbabwe

Membership Type: Full
Disease Area: HIV and AIDS, COVID-19 and SRHR
Kadoma, Zimbabwe

Pancreatic Cancer Canada

Membership Type: Full
Disease Area: Pancreatic cancer
Toronto, Canada

Papua New Guinea National Cancer Centre

Membership Type: Associate
Disease Area: Cancer
Finschhafen, Papua New Guinea

Patient Safety Movement Foundation

Membership Type: Full
Disease Area:Cross Disease
Los Angeles, USA

Patients Safety Foundation

Membership Type: Full
Disease Area: Cross Disease
Lodz, Poland

Penang of Multiple Sclerosis Support Group Association

Membership Type: Full
Disease Area: Multipe sclerosis
Penang Island,Malaysia

Peoples Development Community(PDC)

Membership Type: Associate
Disease Area: Cross Disease
Dhaka, Bangladesh

pharmacists nineveh medical organization

Membership Type: Associate
Disease Area: Cross Disease
Mosul, Iraq

PinkDrive NPC

Membership Type: Full
Disease Area: Cancer, HIV, TB, Diabetes
Johannesburg, South Africa

Polish Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Warsaw, Poland

Polskie Towarzystwo Chorób Atopowych

Membership Type: Full
Disease Area: Atopic diseases (atopic eczema, asthma, hives, allergic rhinitis, allergic conjunctivitis) and allergies
Warsaw, Poland

Positive Health Media Initiative

Membership Type: Full
Disease Area: Cross Disease
Benue State, Nigeria

Positive Men’s Union (POMU)

Membership Type: Full
Disease Area: HIV/AIDS and Tuberclosis
Kampala, Uganda

Preventive Cardiovascular Nurses Association (PCNA)

Membership Type: Associate
Disease Area: Cardiovascular Disease and its comorbidities
Wisconsin, USA

Professional Relief Organisation

Membership Type: Associate
Disease Area: Cross Disease
Essex, United Kingdom

Psoriasis Asia Pacific

Membership Type: Full
Disease Area: NCDs
Mandaluyong City, Philippines

Psoriasis awareness club Bangladesh

Membership Type: Full
Disease Area: Psoriasis and psoriatic arthritis
Dhaka, Bangladesh

Psoriasis Philippines

Membership Type: Full
Disease Area: Psoriasis and Psoriatic Arthritis
Makati City, Philippines

Psoriatic Patient Support Association “KALYPSO"

Membership Type: Full
Disease Area: Psoriasis and Psoriatic Arthritis
Athens, Greece

Public Foundation “Ergene"

Membership Type: Full
Disease Area: breast cancer and cervical cancer
Bishkek, Kyrgyzstan

Pulmonary Hypetension Latin Society / Sociedad Latina de Hipertension Pulmonar

Membership Type: Full
Disease Area: Pulmonary Hypertension
Miami, USA

Rare Disease Foundation

Membership Type: Full
Disease Area: Rare Disease
Vancouver, Canada

Rare Disease Ghana Initiative

Membership Type: Full
Disease Area: Undiagnosed, Genetic and Rare Diseases
Accra, Ghana

Rare Diseases Foundation of Iran(RADOIR)

Membership Type: Full
Disease Area: Rare Diseases, Rare Genetic Disorders and Undiagnosed Diseases (UDN)
Tehran, Iran

Rare Disorders Kenya

Membership Type: Associate
Disease Area: Cross Disease,
Nairobi, Kenya

Rare Disorders NZ

Membership Type: Full
Disease Area: All Rare Disorders
Wellington, Newzealand

Reach to Recovery International, Inc.

Membership Type: Full
Disease Area: Breast Cancer
Baltimore, USA

RED NOSES Clowndoctors International

Membership Type: Associate
Disease Area: We are a healthcare clowning organisation, anything related to mental health & psychosocial support, as well as humour and culture, would be of interest.
Vienna, AUSTRIA

Red Ribbon Istanbul

Membership Type: Full
Disease Area: HIV/AIDS
Istanbul, Turkey

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Membership Type: Full
Disease Area: Complex Regional Pain Syndrome (CRPS)
Milford, USA

RheumaCura

Membership Type: Full
Disease Area: Specific Disease Area, rheumatic and musculoskeletal disorders and disease
Bern, Switzerland

Royal Health Awareness Society

Membership Type: Associate
Disease Area: Cross Disease
Amman, Jordan

Rwanda NCD Alliance

Membership Type: Full
Disease Area: NCD
Kigali – Kinamba, KN8 Av27

Save Foundation

Membership Type: Full
Disease Area: Mother & child health care
Lahore, Pakistan

SENOSALUD

Membership Type: Full
Disease Area: Cancer de Mama
Caracas, Venezuela

SHWE YAUNG HNIN SI CANCER FOUNDATION MYANMAR

Membership Type: Full
Disease Area: Cancer
Yangon, Myanmar

Situka Alliance Initiative, Uganda – SAI

Membership Type: Full
Disease Area: We engage men to build resilient and healthy communities for themselves, spouses and children including the rights to seek medical services.
Kampala, Uganda

Skin and allergic desisases

Membership Type: Full
Disease Area: Skin and allergic
Moscow, Russia

Skin-Hub – Koalicja na rzecz dermatoz i alergii

Membership Type: Full
Disease Area: All dermatoses and allergies
Warsaw, Poland

Slovenian Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Ljubljana, Slovenia

Sociedade Portuguesa de Esclerose Multipla (SPEM)

Membership Type: Full
Disease Area: Multiple Sclerosis
Lisboa, Portugal

South African Depression and Anxiety Group. (SADAG)

Membership Type: Full
Disease Area: mental health
South Africa

Stroke Association Supportnetwork-Ghana (SASNET-GHANA)

Membership Type: Full
Disease Area: NCDs and Pademics
Accra,Ghana

STROKE CARE INTERNATIONAL

Membership Type: Full
Disease Area: STROKE
Lagos, Nigeria

Stroke Support India ( an effor of Nav Anubhuti Welfare Society)

Membership Type: Full
Disease Area: STROKE
Greater Noida, India

Stupid Cancer, Inc.

Membership Type: Full
Disease Area: cancer (specifically adolescent and young adult cancer)
New York, USA

Syria algad relief foundation

Membership Type: Full
Disease Area: Cross Disease
Giza, Egypt

Tanzania Breast Cancer Foundation

Membership Type: Full
Disease Area: Breast Cancer
Dar es Salaam, Tanzania

Thalassaemia and Sickle Cell Australia

Membership Type: Full
Disease Area: Haemoglobin Disorders
Victoria, Australia

THALASSAEMIA FEDERATION OF PAKISTAN

Membership Type:
Disease Area: Beta Thalassaemia
LAHORE, PAKISTAN

Thalassaemia Society of Pakistan

Membership Type: Full
Disease Area: Thalassaemia
LAHORE, PAKISTAN

The Albino Trust of Zimbabwe

Membership Type: Full
Disease Area: Albinism and other forms of disabilities
Harare, Zimbabwe

The Asthma Society of Ireland

Membership Type: Full
Disease Area: Asthma
Dublin, Ireland

The Bricon Foundation

Membership Type: Full
Disease Area: Cancer
Lagos, Nigeria

The BVI Diabetes Association

Membership Type: Full
Disease Area: Diabetes
Tortola, British Virgin Islands

The Cholangiocarcinoma Foundation

Membership Type: Full
Disease Area: Cholangiocarcinoma
Kabuga, Rwanda

The Dominica Cancer Society Inc

Membership Type: Full
Disease Area: Cancer
Roseau, Commonwealth of Dominica

The Dorcas Cancer Foundation

Membership Type: Full
Disease Area: Childhood Cancer
Lagos, Nigeria

The Ehlers-Danlos Society

Membership Type: Full
Disease Area: Ehlers-Danlos syndrome
New York, USA

The Estonian Inflammatory Bowel Disease Association

Membership Type: Full
Disease Area: IBD
Tallinn, Estonia

The Mended Hearts, Inc.

Membership Type: Full
Disease Area: Cardiovascular Disease
Georgia, USA

The National Back Pain Association

Membership Type: Full
Disease Area: Back pain
London, United Kingdom

The National Organisation for People Living with Hepatitis B

Membership Type: Full
Disease Area: Viral Hepatitis
Kampala, Uganda

The Patient Benevolent Society

Membership Type: Full
Disease Area: Cross Disease
Lahore, Pakistan

The Swallows Head & Neck Cancer Support Charity

Membership Type: Full
Disease Area: Head & Neck Cancer
Manchester, United Kingdom

Together against cancer Fund

Membership Type: Associate
Disease Area: oncology
Moscow, Russia

Tulasi Maya Memorial Cancer Relief Foundation

Membership Type: Full
Disease Area: Cervical Cancer, Breast Cancer, Cancer Advocacy and Tobacco control
Kathmandu, Nepal

Tunisian Association of Multiple Sclerosis Patients

Membership Type: Associate
Disease Area: multiple sclerosis
Tunis, Tunisia

Uganda Allinace of Patients" Organisations

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Uganda Women’s Cancer Support Organisation

Membership Type: Full
Disease Area: cancer
Bukoto, Kampala

UKRAINIAN DIABETIC FEDERATION

Membership Type: Full
Disease Area: DIABETES
Kyiv, Ukrain

Unidos Contra el Cáncer (Tour Rosa Assication)

Membership Type: Full
Disease Area: Cancer
San José, Costa Rica

United Kingdom Thalassaemia Society

Membership Type: Full
Disease Area: Thalassaemia
London, United Kingdom

Uzbekistan CML patients league

Membership Type: Full
Disease Area: Chronic Myeloid Leukemia, Acutel Lymphoid Leukemia, GIST
Tashkent, Uzbekistan

Venezuelan Breast Cancer Research and Education Foundation

Membership Type: Full
Disease Area: Breast Cancer
Caracas, Venezuela

Vlaams Hepatitis Contactpunt

Membership Type: Full
Disease Area: liver diseases (hepatitis and NASH)
Brussels, Belgium

Welfare Hand Organisation

Membership Type: Full
Disease Area:Cross Disease
Peshawar, Pakistan

Wiskott-Aldrich Foundation

Membership Type: Full
Disease Area: Wiskott-Aldrich Syndrome
Atlanta, USA

Women and Child Support Organization (WOCSO)

Membership Type: Full
Disease Area: Cross Disease
Mogadishu, Somalia

Women for Cancer, Early Detection and Treatment

Membership Type: Full
Disease Area: Cervical Cancer
Eldoret, Kenya

WOMEN IN COMMUNITES ZIMBABWE

Membership Type: Full
Disease Area: HIV, TB and Malaria and Cervical cancer
Gweru, Zimbabwe

Women in Hepatitis Africa WIHA

Membership Type: Full
Disease Area: Hepatitis
Lagos, Nigeria

Women’s Coalition Against Cancer – WOCACA

Membership Type: Full
Disease Area: Reproductive Cancers and other Non-Communicable Diseases
Lilongwe, Malawi

World Alliance of Pituitary Organizations ( ‘WAPO’)

Membership Type: Full
Disease Area: All related diseases (Thyroid, Obesity, Diabetes 2, Vision problems, etc) and side-effects which are often involved in a pituitary disorder.
Uden, Netherlands

YASKA Brunei

Membership Type: Full
Disease Area: Chilhood Cancer
PulauBerambang, Brunei

Yayasan Peduli Psoriasis Indonesia (psorIndo)

Membership Type: Full
Disease Area: All diseases insider of the body
Jakarta, Indonesia

Ye Ethiopia cancer association

Membership Type: Full
Disease Area: Cancer
Addis Ababa, Ethiopia

Zambian Cancer Society

Membership Type: Full
Disease Area: Cancer
Lusaka, Zambia

Zimbabwe People Living with HIV Coordinating Board

Membership Type: Full
Disease Area: Cross Disease
Harare, Zimbabwe

National Alliance for Rare Diseases Support – Malta

Membership Type: Full
Disease Area: Cross Disease
Valletta, Malta

Lake Health and Wellbeing

Membership Type: Full
Disease Area: Cross Disease
Bird Rock, Saint Kitts and Nevis

Russian Association on Osteoporosis

Membership Type: Associate
Disease Area: Osteoporosis
Moscow, Russia

Charter of “Fighting Leukemia" Public Union

Membership Type: Full
Disease Area: Leukemia
Baku, Azerbaijan

SANO

Membership Type: Full
Disease Area: Malignant diseases in children
Skopje, North Macedonia

Mathiwos Wondu-YeEthiopia Cancer Society

Membership Type: Full
Disease Area: NCD & Cancer
Addis Ababa, Ethiopia

ASHIC, Foundation for Childhood Cancer

Membership Type: Full
Disease Area: Childhood Cancer
Dhaka, Bangladesh

Fertility Europe

Membership Type: Full
Disease Area: Infertility
Brussels, Belgium

FINCOPP-FEDERAZIONE ITALIANA INCONTINENTI E DISFINZIONI PAVIMENTO PELVICO

Membership Type: Associate
Disease Area: Cross Disease
Bari, Italy

ASSOCIAZIONE ITALIANA STOMIZZATI A.I.STOM. O.D.V.

Membership Type: Associate
Disease Area: STOMIA
Bari, Italy

Campaigning for Cancer

Membership Type: Full
Disease Area: Cancer
Johannesburg, South Africa

Breast Care International (BCI)

Membership Type: Full
Disease Area: Breast Cancer
Kumasi, Ghana

SEN Slovensko/Cesko

Membership Type: Associate
Disease Area: Religious and Spiritual Problem as defined in the psychiatric manual DSM V
Bánovce nad Bebravou, Slovakia

Pain Support Organisation

Membership Type: Full
Disease Area: Cross Disease
Kampala, Uganda

Trinity Healthcare Foundation

Membership Type: Full
Disease Area: Cross Disease
Lagos, Nigeria

Dup15q Alliance

Membership Type: Full
Disease Area: Dup15q syndrome
North Carolina, USA

Cancer Association of Namibia (WO30)

Membership Type: Full
Disease Area: Cancer
Windhoek, Namibia

Crohn en colitis ulcerosa vereniging vzw

Membership Type: Full
Disease Area: IBD
Brussels, Belgium

Pun Yaung Hnin Si (Pink Rose) Breast Cancer Patients Support Group

Membership Type: Full
Disease Area: Breast Cancer
Yangon, Myanmar

ABRALE – Brazilian Lymphoma and Leukemia Association

Membership Type: Full
Disease Area: Oncology
São Paulo, Brazil

Oncoguia

Membership Type: Full
Disease Area: Cancer
São Paulo, Brazil

SAID NGO

Membership Type: Full
Disease Area: Colon Cancer Awareness
Beirut, Lebanon

Lugei Foundation Uganda

Membership Type: Full
Disease Area: Cross Disease
kampala Uganda

PT.AVC – União de Sobreviventes, Familiares e Amigos

Membership Type: Full
Disease Area: Stroke
Viseu, Portugal

Australia Alopecia Areata Foundation Inc

Membership Type: Associate
Disease Area: Alopecia Areata – All forms
Melbourne, Australia

Por Una Vida Libre de ACV

Membership Type: Full
Disease Area: Cross Disease
Argentina

MULTIPLE SCLEROSIS ASSOCIATION OF LANKA

Membership Type: Full
Disease Area: Multiple Sclerosis
Colombo, Sri Lanka

Psoriatic and Atopic Eczema Association Czech Rep.

Membership Type: Full
Disease Area: Cross Disease
Prague, Czech Republic

Eczema Outreach Support

Membership Type: Full
Disease Area: Atopic Eczema
Edinburgh, United Kingdom

Alliance Algérienne contre les Maladies rares

Membership Type: Full
Disease Area: Rare Disease
Baraki, Algeria

World Federation of Public Health Associations

Membership Type: Associate
Disease Area: Cross Disease
Geneva, Switzerland

Associação Portuguesa de Doentes da Próstata

Membership Type: Associate
Disease Area: Prostata cancer
Olivais, Portugal

Asociación Tejido Azul

Membership Type: Full
Disease Area: Pulmonary Hypertension
Meta, Colombia

Federación Colombiana de Enfermedades Raras (FECOER)

Membership Type: Full
Disease Area: Rare Diseases
Provincia De Castilla, Colombia

United Mission to Rural Area(UNMIRA) Nepal

Membership Type: Full
Disease Area: Cross Diseases
Tokha Municipality, Nepal

Asociación Guatemalteca Héroes de Esperanza

Membership Type: Full
Disease Area: Hemato-Oncology Diagnoses and Hemophilia
Guatemala City, Guatemala

ANAQ Foundation for Sickle Cell & Nutrition

Membership Type: Full
Disease Area: Sickle Cell Disease
Kumasi, Ghana

Ukrainian Hemophilia Association

Membership Type: Full
Disease Area: Cross Disease
Kyiv, Ukraine

Women’s Hope Foundation (WHF)

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Pacienti IBD

Membership Type: Full
Disease Area: IBD
Polská, Czech Republic

DEBRA South Africa

Membership Type: Full
Disease Area: Specific Disease Area, Epidermolysis Bullosa
Cape Town, South Africa

Niger League Figth againt Cancer

Membership Type: Full
Disease Area: Cross Disease
Niamey, Niger

Global media foundation

Membership Type: Full
Disease Area: Cross Disease
Sunyani, Ghana

Shared Blessing Alliance (SBA)

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Vitiligo Support and Research Group

Membership Type: Full
Disease Area: Vitiligo
Holguin City, Cuba

Health Improvement and Population Safety Movement (HIPS Movement)

Membership Type: Full
Disease Area: Cross disease
Limbe, Cameroon

Association of Patients with Asthma, Allergies and Atopic Dermatitis – AAA Association

Membership Type: Full
Disease Area: Cross disease
Sarajevo, Bosnia and Herzegovina

Esperantra Centro

Membership Type: Full
Disease Area: Cross disease
Huancayo, Peru

LINDA AFYA SOCIETY

Membership Type: Associate
Disease Area: Cross disease
Nairobi, Kenya

Hope for Cancer Kids (HCK)

Membership Type: Full
Disease Area: Specific Disease Area, Childhood Cancer
Ruiru, Kenya

PANCYPRIAN ASSOCIATION OF RARE GENETIC DISEASES UNIQUE SMILES

Membership Type: Full
Disease Area: Cross Disease
Nicosia, Cyprus

Botswana Organisation for Rare Diseases (BORDIS)

Membership Type: Full
Disease Area: Cross Disease
Gaborone, Botswana

AFRH – Association Française pour la Recherche sur l’Hidrosadénite

Membership Type: Full
Disease Area: Specific Disease Area, Hidradenitis Suppurativa / Maladie de Verneuil
Saint Benoit, France

Patient Voice Partners

Membership Type: Associate
Disease Area: Cross Disease
Calgary, Canada

BALD GIRLS DO LUNCH, Inc

Membership Type: Full
Disease Area: Specific Disease Area, Alopecia Areata
New York, USA

Public Health Education Liaison and Advocacy (PHELA) Foundation

Membership Type: Full
Disease Area: Cross Disease
Johannesburg, South Africa

NORDMASEP

Membership Type: Full
Disease Area: Specific Disease Area, Multiple sclerosis(MS)
Rabat, Morocco

Lifeline for Childhood Cancer Ghana

Membership Type: Full
Disease Area: Specific Disease Area, childhood cancers
Accra, Ghana

Hope & Courage International

Membership Type: Full
Disease Area: Supports children battling cancer and other life- limiting illnesses
Nairobi, Kenya

Public Health Initiative

Membership Type: Associate
Disease Area: Cross Disease
Kathmandu, Nepal

Confraternity of Patients Kenya (Cofpak)

Membership Type: Full
Disease Area: Cross Disease
Kenya

Epilepsy Warriors Foundation

Membership Type: Full
Disease Area: Epilepsy
Limbe, Malawi

Cancer Survivors Quest

Membership Type: Full
Disease Area: Cancer
Limbe, Malawi

Partnership to Fight Chronic Disease

Membership Type: Full
Disease Area: Cross Disease
Washington, DC USA

Nyankonton Aid Foundation

Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Thalassemia Foundation Ghana

Membership Type: Full
Disease Area: Thalassemia and sickle cell
Kumasi, Ghana

Tim Africa Aid Ghana

Membership Type: Full
Disease Area: Cross Disease
Accra, Ghana

FUNDACION SAYANI

Membership Type: Full
Disease Area: Cross Disease
San Salvador De JUJUY, Brazil

Vaincre Dunnigan

Membership Type: Full
Disease Area: Cross Disease
Saint Joseph, France

Saudi Patient Experience Club under Saudi Health Administration Association

Membership Type: Full
Disease Area: Cross Disease
Riyadh, Saudi Arabia

Unidos pela Vida – Brazilian Institute for Cystic Fibrosis Care

Membership Type: Full
Disease Area: Cystic Fibrosis
São Paulo, Brazil

National Kidney Foundation

Membership Type: Full
Disease Area: Kidney diseases
Selangor, Malaysia

Pakistan Down Syndrome Association (PDSA)

Membership Type: Full
Disease Area: Cross diseases
Karachi, Pakistan

Acufade

Membership Type: Full
Disease Area: Cross diseases
Santa Cruz de Tenerife, Spain

Estonian Stroke Patients Society

Membership Type: Full
Disease Area: Brain
Tallinn, Estonia

Hidradenitis Suppurativa Australia

Membership Type: Associate
Disease Area: Hidradenitis Suppurativa Australia and advocacy, awareness and education around this
Queensland, Australia

Greek Carers Network Epioni

Membership Type: Associate
Disease Area: Cross Disease
Athens, Greece

Down Syndrome Foundation Uganda

Membership Type: Full
Disease Area: Down Syndrome
Kampala, Uganda

The Josiah Centre

Membership Type: Associate
Disease Area: Cerebral Palsy
Accra, Ghana

MD Healthcare

Membership Type: Associate
Disease Area: Cross Disease
Birmingham, United Kingdom

ASOCIACION DE PACIENTES CON ANGIOEDEMA HEREDITARIO DEL PERU

Membership Type: Full
Disease Area: ENFERMEDAD RARA / ANGIOEDEMA HEREDITARIO
Lima, Peru

Organización de Pacientes con Hipertensión Pulmonar

Membership Type: Full
Disease Area: Cross Disease
Lima, Peru

King Hussein Cancer Foundation

Membership Type: Full
Disease Area: Cancer
Amman, Jordan

Universidad del paciente y la familia

Membership Type: Associate
Disease Area: Cross Disease
Barcelona, Spain

Sree Renga Hospital

Membership Type: Associate
Disease Area: Cross Disease
Tamil Nadu, India

FEMINA M-Association for help and support of patients with gynecologic diseases

Membership Type: Full
Disease Area: Gynecological diseases with special accent on gynecologic malignancies
Skopje, North Macedonia

Cyprus Stroke Association

Membership Type: Full
Disease Area: Stroke
ALEXANDROU PAPAGOU Cyprus

Nepal Stroke Association

Membership Type: Full
Disease Area: Stroke
Bhairahawa, Nepal

Thalassaemia & Sickle Cell Society of Bangalore

Membership Type: Full
Disease Area: Cross Disease, Thalassaemia Sickle Cell
Karnataka, India

PANHELLENIC HEART DISEASE ASSOCIATION

Membership Type: Full
Disease Area: CARDIOVASCULAR HEART DISEASE (CVD)
Athens, Greece

ASSOCIAÇÃO AÇÃO AVC

Membership Type: Full
Disease Area: AVC – STROKE
Pajuçara, Maceió – AL, Brazil

NON COMMUNICABLE DISEASES ALLIANCE KENYA

Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

Cyprus Federation of Patients’ Associations

Membership Type: Full
Disease Area: Cross Disease
Nicosia, Cyprus

National Organization of Persons with Disabilities of Serbia (NOOIS)

Membership Type: Full
Disease Area: Cross Disease
Belgrade, Serbia

FNAAF

Membership Type: Associate
Disease Area: Cross Disease
Bordeaux, France

HOPE Qatar Centre for Special Needs

Membership Type: Associate
Disease Area: Cross Disease
Doha, Qatar

Egyptian Thalassemia Association ETA

Membership Type: Full
Disease Area: Thalassaemia
Qena, Egypt

MYELOMA EURONET ROMANIA

Membership Type: Full
Disease Area: Cross Disease
Bucharest, Romania

brainstrust – the brain cancer people

Membership Type: Full
Disease Area: Brain cancer – primary and secondary
Portsmouth, United Kingdom

Global Healthy Living Foundation (GHLF)

Membership Type: Full
Disease Area: Cross Disease
New York, USA

Bhutan Kidney Foundation

Membership Type: Full
Disease Area: Cross Disease
Thimphu, Bhutan

GIST Cancer UK

Membership Type: Full
Disease Area: Gastro-Intestinal Stromal Tumours (GISTs)
London, United Kingdom

Scleroderma Awareness Philippines (SAP) registered as Systemic Sclerosis Filipinas Inc. (SSFI)

Membership Type: Full
Disease Area: Scleroderma
Philippines

Connecting Patients, Families and Medical Organizations

Membership Type: Full
Disease Area: Cross Disease
Japan

Hong Kong Psoriasis Patients Association

Membership Type: Full
Disease Area: Psoriasis
Sheung Wan, Hong Kong

Albinism Fellowship of Australia

Membership Type: Full
Disease Area: Albinism
Australia

Bhutan Cancer Society

Membership Type: Full
Disease Area: Cancer
Thimphu, Nepal

Vietnam Psoriasis Association PSORVIET

Membership Type: Full
Disease Area: Cross Disease
Dong Da dist., Viet Nam

Vietnam Vitiligo Association

Membership Type: Full
Disease Area: Vitiligo
Dong Da dist., Viet Nam

Shweta Association

Membership Type: Full
Disease Area: Vitiligo
Pune, India

Eczema Association of Australasia Inc

Membership Type: Full
Disease Area: Atopic eczema
Queensland, Australia

Rare Skin Disease Nepal

Membership Type: Associate
Disease Area: Cross Disease
Kathmandu, Nepal

THE HONEYBEE CHILDRENS CLINIC

Membership Type: Associate
Disease Area: Cross Disease
HURLINGHAM, Kenya

Institute of Neurosciences Kolkata

Membership Type: Associate
Disease Area: Only superspeciality and Comprehensive Neuro Care hospital in Eastern India aimed at providing dedicated, affordable and yet highly skilled care in Neurology, Neurosurgery, Pediatric Neurology, Neuro-Psychiatry, Neuro-Radiology, Neuro-Intervention and Neuro-Rehabilitation
Kolkata, India

China Chronic Skin Disease Fund

Membership Type: Full
Disease Area: Chronic Skin Disease
Beijing, China

Pahuja Trust for Blood Disorders and Thalassemia

Membership Type: Full
Disease Area: Thalassemia
New Delhi, India

Africa Cancer Foundation

Membership Type: Full
Disease Area: Cancer
Kenya

Lok Bandhu Raj Narayan Combined Hospital Lucknow

Membership Type: Associate
Disease Area: Cross Disease
Lucknow, India

Axios International

Membership Type: Associate
Disease Area: Cross Disease
Dubai, United Arab Emirates

Center of Excellence for Patient Safety and Quality

Membership Type: Associate
Disease Area: Cross Disease
Indonesia

General authority for Healthcare accreditation and regulations GAHAR

Membership Type: Associate
Disease Area: Cross Disease
Egypt

Africa Access Health

Membership Type: Associate
Disease Area: Cross Disease
Paynesville, Montserrado County, Liberia

Pseudomyxoma Survivor
Membership Type: Full
Disease Area: Appendix cancers, including pseudomyxoma peritonei
Warwick, United Kingdom

Psoriasis Association of Singapore
Membership Type: Full
Disease Area: Psoriatic Disease
Novena, Singapore

Manzil Home Healthcare Services
Membership Type: Associate
Disease Area: Cross Disease
Novena, Singapore

VIPOC – Vitiligo International Patient Organizations Committee
Membership Type: Full
Disease Area: Vitiligo
Paris, France

QUAD A ( The American Association for Accreditation of Ambulatory Surgery Facilities )
Membership Type: Associate
Disease Area: Cross Disease
Illinois, USA

Sankalpa Voluntary Organization
Membership Type: Full
Disease Area: Thalassemia and Sickle Cell disease
Khammam,India

Psoriasis Australia Inc
Membership Type: Full
Disease Area: Psoriatic Disease
Victoria, Australia

Bahrain MS Patients society
Membership Type: Full
Disease Area: Multiple Sclerosis
Manama, Kingdom of Bahrain

Yemen Society for Thalassemia & Genetic Blood Disorders
Membership Type: Full
Disease Area: Patients with thalassemia and hereditary blood disorders
Sana’a, Yemen

The National Multiple Sclerosis Society
Membership Type: Full
Disease Area: Multiple Sclerosis
Abu Dhabi, UAE

BASMA Association for Supporting Children with Cancer and Their Families
Membership Type: Full
Disease Area: Pediatric Cancer
Damascus, Syria

Health Care Foundation Zambia
Membership Type: Full
Disease Area: Cross Disease
Lusaka, Zambia

Empowerment for Sustainable Livelihood
Membership Type: Associate
Disease Area: Cross Disease
Accra, Ghana

Patient Rights Watch Ghana
Membership Type: Full
Disease Area: Cross Disease
Kumasi, Ghana

Hajo Non-Communicable Diseases Prevention Initiative (Hajo-NCDPI)
Membership Type: Associate
Disease Area: Cross Disease
Abuja, Nigeria

FUNDACION FOMENTO DE DESARROLLO TERESA DE JESUS IAP
Membership Type: Full
Disease Area: Colon Cancer
Ciudad de México

Medicure Trauma Centre-Nabumali, Mbale
Membership Type: Associate
Disease Area: Cross Disease
Mbale, Uganda

Hadley
Membership Type: Full
Disease Area: Vision Loss
Chicago, USA

MindFreedom Ghana (MFGh)
Membership Type: Full
Disease Area: Mental Health
Accra, Ghana

Yemen association for care & rehabilitation blind
Membership Type: Associate
Disease Area: Cross Disease
Sana’a, Yemen

Sexual Health Foundation
Membership Type: Full
Disease Area: Prostate Cancer, Sexual Health Diseases
Kumasi, Ghana

Union Nationale des Aveugles et Malvoyants du Congo (UNAMAC)
Membership Type: Full
Disease Area: Cécité
Ekadouma, Congo

International Agency for the Prevention of Blindness
Membership Type: Full
Disease Area: Vision Impairment
London, UK

AFAF (Association Française de l’Ataxie de Friedreich)
Membership Type: Full
Disease Area: Friedreich’s Ataxia
Paris, France

EPIDERMOLYSIS BULLOSA MANAGEMENT SERVICES
Membership Type: Full
Disease Area: EPIDERMOLYSIS BULLOSA
Putrajaya, Malaysia

CEREBRUM2007
Membership Type: Full
Disease Area: Acquired brain injury
Prague, Czech Republic

Heal Canada
Membership Type: Full
Disease Area: Cross Disease
Toronto, Canada

Child and Youth Care
Membership Type: Full
Disease Area: Non communicable disease
Harare, Zimbabwe

Nest Of Hope Advocacy and Support Community
Membership Type: Full
Disease Area: Cancer
Abuja, Nigeria

Lebanese Center for Palliative Care – Balsam
Membership Type: Associate
Disease Area: Cross Disease
Beirut, Lebanon

Retina Australia
Membership Type: Full
Disease Area: Eye Diseases
Melboune, Australia

KENYA UNION OF THE BLIND
Membership Type: Full
Disease Area: Cross Disease
Nairobi, Kenya

Members WPA - World Patients Alliance

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