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Global Liver Institute's Rare Liver Diseases Empowerment Day - World Patients Alliance

Global Liver Institute’s Rare Liver Diseases Empowerment Day

Date: February 17, 2023

The World Patients Alliance is pleased to highlight the upcoming “Rare Liver Diseases Empowerment Day" organized by the Global Liver Institute, a distinguished member organization committed to advancing patient-centric initiatives. Taking place on Saturday, February 17, 2023, at 12pm ET, this virtual event is specifically tailored for pediatric patients aged 8-18 facing rare liver diseases.

Event Highlights:

The Empowerment Day is a two-hour virtual session designed to offer pediatric patients a unique opportunity:
1. Connect with Peers and Caregivers: A platform for pediatric rare liver disease patients to connect with others facing similar challenges and their dedicated caregivers.

2. Insights from Lived Experiences: Gain valuable insights from patients who have lived through rare liver diseases, fostering a sense of shared understanding and community.
3. Communication Skills Development: Develop essential skills to effectively communicate their rare disease needs, empowering pediatric patients to express their concerns and requirements confidently.
4. Storytelling and Expression: Create and share their own rare liver disease stories, fostering a sense of empowerment and solidarity.

Registration Details: Interested participants can register for the event through the following Zoom registration link: Empowerment Day Registration

More Information: For additional details, please visit the Global Liver Institute’s official website: Global Liver Institute

Member Organization’s Commitment: As a member organization of the World Patients Alliance, the Global Liver Institute demonstrates a steadfast commitment to patient empowerment, community building, and addressing the unique needs of those facing rare liver diseases. This event is a testament to their dedication to fostering connections, sharing knowledge, and empowering pediatric patients to navigate the challenges associated with rare liver diseases.

Call to Action: The World Patients Alliance encourages pediatric patients, caregivers, and all stakeholders to participate in this insightful Empowerment Day. By actively engaging in events like these, we collectively contribute to building a more supportive and informed rare disease community.

In Unity for Patient Empowerment, World Patients Alliance