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PATIENT VOICES
Rare Realities
A Sleep Unseen: Living in a World That Doesn’t Understand
Leakey Mwenda
Sleeping disorder
Kenya
Since I was in seventh grade, I’ve struggled with a sleep disorder that has never been properly addressed. Despite seeking help in various places, nothing has truly worked.
Leakey Mwenda
Sleeping disorder
Kenya
Since I was in seventh grade, I’ve struggled with a sleep disorder that has never been properly addressed. Despite seeking help in various places, nothing has truly worked.
“More Than Skin Deep” Eden’s Story of Rare Disease, Resilience
Eden Quine- Taylor
Cutis Marmorata Telangiectatica Congenita (CMTC)
England
From the moment she was born, Eden’s skin told a story.
Eden Quine- Taylor
Cutis Marmorata Telangiectatica Congenita (CMTC)
England
From the moment she was born, Eden’s skin told a story.
Surviving a rare heart condition, finding strength through struggle
Konstantinos Chortis
Congenital Heart Disease
Greece
Hello, my name is Konstantinos Chortis, i’ m 56 years old and i live in Athens, Greece since 1988. I was born in Sydney, NSW, Australia to Greek immigrants. I was born with a quite common congenital heart condition, namely ventricular septal defect and additionally with a wide cleft on my mitral valve.
Konstantinos Chortis
Congenital Heart Disease
Greece
Hello, my name is Konstantinos Chortis, i’ m 56 years old and i live in Athens, Greece since 1988. I was born in Sydney, NSW, Australia to Greek immigrants. I was born with a quite common congenital heart condition, namely ventricular septal defect and additionally with a wide cleft on my mitral valve.