Maria Ines Fonseca - World Patients Alliance

Maria Ines Fonseca is a social communication professional with a strong vocation for supporting individuals with rare diseases.

In addition to her professional work, she is the mother of a teenager living with Prader-Willi Syndrome, which has deepened her personal and professional commitment to this cause.

She currently collaborates with various organizations dedicated to improving the quality of life of people affected by rare diseases, including:Prader-Willi Association of Uruguay, where she provides support and guidance to families of individuals living with this syndrome.

Todos Unidos por las Enfermedades Raras Uruguay (ATUERU), where she contributes to strengthening the patient advocacy movement in the country. Ibero-American Alliance for Rare Diseases (ALIBER), serving as an external Social Communication Specialist for the SIO ALIBER program, offering information and guidance to patients and families seeking assistance.