I currently work as a study coordinator at Deutsche Aidshilfe e.V. (German AIDS Alliance), the umbrella association for HIV organisations in Germany. I am responsible for coordinating the West-European leg of the EMIS-2023/24 study, a large-scale sociological research that looks at the sexual and mental health of men who have sex with men, and trans people. I am also the project coordinator of CORE – Community Response to End Inequalities, a unique project supported by the European Union that provides capacity building and support for community-based and community-led service providers in the fields of HIV, viral hepatitis, tuberculosis, and STIs. Since 2014, I have also contributed to the courses and contents of the European Patients’ Academy for Therapeutic Innovation (EUPATI). I have been working as a trainer, lecturer, course coordinator, meeting facilitator and content developer for EUPATI, various organisations, and universities. I focus on developing training courses and processes for patient engagement both for patient and advocacy organisations, and the pharmaceutical industry. As a researcher, I have been engaged in exploring and understating matters related to patient involvement in research and development, HTA, and other fields. Living with HIV since 2003, I served as a member of the board of directors of the European AIDS Treatment Group (EATG) for almost 4 years and also served as the co-chair of the European Commission’s Civil Society Forum on HIV/AIDS between 2013 and 2015; and have been involved in numerous EU and global projects. I have been a member of The BMJ Patient Panel since 2017. I was a member of the European Community Advisory Board (ECAB) on HIV from 2004 to 2024 and am also a member of the German Community Advisory Board (D-CAB). I sat on the Scientific Committee of the European AIDS Clinical Society in 2015 and held the opening keynote speech at the EACS Conference in that same year. I attended numerous HIV-related conferences (CROI, EACS, IAS, Glasgow) as a patient representative, session convener, session chair, and speaker. I have been publishing regularly in scientific journals as part of my engagement in different projects, and as an independent researcher and author. Besides, I have also produced a wealth of information materials (videos, articles, and websites) in my native Hungarian for people who live with HIV. You can read my works in English, German, and Hungarian here: https://tatk.academia.edu/TamasBereczky

J.S. Arora is the General Secretary of National Thalassemia Welfare Society & Federation of Indian Thalassemia. He is a Patients for Patients Safety (PFPS) Champion since 2007 and is also serving as a member of the Advisory Group of WHO’s Patients for Patients Safety Program since 2014. Dr. Arora is the founder member of the Indian Alliance of Patient Groups as well the founding trustee of the Genomics And Public Health Foundation. He has previously served as Coordinator of Thalassemia Cell, DHS, Delhi as well as member of Hospital Advisory Committee, DDU Hospital, Delhi and the State VAT Advisory Committee, Delhi. He is also a member of State Blood Transfusion Council. He is the author of Florilegium of Thalassemia and co-author of several publications including a chapter in the postgraduate textbook Pediatrics and Care & Control of Thalassemia: In the New Millennium” 2000.

Edmund is an esteemed Associate Lecturer with extensive experience teaching at universities in the US, UK, Australia, Singapore, and other international higher learning institutions. Edmund’s academic background is robust, having recently been offered a place at the prestigious University College London (UCL) Doctorate in Business Administration (DBA) Health programme. He is also in the process of completing his LL.M. Masters in International Law from the University of Lincoln in the UK and the Master of Health Economics from the University of Newcastle in Australia. A dedicated advocate for patients with chronic conditions, Edmund has successfully managed his psoriasis with biologic treatment, significantly improving his work capacity and quality of life. His journey has earned him the title of ’10x Productive Chronic Patient’, inspiring others facing similar health challenges. Edmund is committed to advancing the application of Artificial Intelligence in healthcare, recognising its potential to revolutionise patient care and improve health outcomes globally. His insights and experiences make him a valuable contributor to the 2nd World Patients Conference.

Mecciya Majrashi completed her MBA in Total Quality Management in 2012 From University of Leicester, Leicester, United Kingdom and holds a rich 20-year experience in healthcare sectors. She has been appointed as the President of Saudi Patient Experience Club since January 2022. She is also the part of a team working with the Patient Advocacy Council since 2019 representing a group of individuals committed to engaging with one another, sharing ideas and expanding the engagement of Patient Advocate Leaders in The Beryl Institute community from different entities around the world. Mecciya is also a Board Member at Motaafi (Cancer Survivor foundation) since March 2018 where she helps in developing strategies and extends support to the Executive Board Members for achieving the goals, objectives, and better outcomes. She also helps in preparing for policy Design and Advocacy interlinkages between the Civil Society Engagement Group for Non-profits organization (C20) and G20. Mecciya believes that she owes her life to Kingdom of Saudi Arabia that ensured excellent treatment to all cancer patients and provided care that enabled Mecciya to live and work to her full potential so far.