Fifth MENA Congress for Rare Diseases 2026 | World Patients Alliance

Member organization: MENA Organization for Rare Diseases

Date: 3–5 September 2026

Location: Abu Dhabi, United Arab Emirates

The Fifth MENA Congress for Rare Diseases took place in Abu Dhabi, United Arab Emirates, from 3–5 September 2026, bringing together more than 1,500 participants and over 140 speakers to exchange knowledge and strengthen collaboration in rare disease care and research. Organized in partnership with Burjeel Medical City, Burjeel Cancer Institute and the Genetics and Rare Disease Center, with support from the Department of Health – Abu Dhabi, the congress welcomed 40 international experts from more than 20 countries. More than 30 scientific sessions explored advances in diagnosis, treatment and research, alongside health economics, insurance coverage and medical education. Topics included gene therapy, emerging gene-editing approaches, clinical trials, genomics and the role of artificial intelligence in improving rare disease diagnosis and management. The congress also featured dedicated summits on genetic counselling, Duchenne muscular dystrophy, Angelman syndrome and Huntington’s disease. By connecting healthcare professionals, researchers and patient communities, the event provided a platform to share expertise, address gaps in access and explore opportunities to improve care and quality of life for people living with rare diseases. Further information: https://menarares.org/