Hearing in Patients with Pompe Disease: Detection and Care | World Patients Alliance

20 March 2026 | Online

Fundación Pompe Club Internacional hosted an educational webinar focused on hearing detection and care for people living with Pompe disease.

The session featured speech-language pathologist Clara Elena González, Director of Fonomedic S.A.S., who shared specialist information on hearing-related concerns and the importance of appropriate monitoring and support.

Brayhan, Fernando and volunteers from Universidad del Bosque facilitated the event. Broadcast live through Zoom and promoted across LinkedIn, Facebook and YouTube, the webinar helped make relevant information accessible to people living with Pompe disease, their families and the wider community.